We have more comprehensive information on ectodermal dysplasias than any other organization. In this library, you can find detailed articles, guides, webinars and toolkits on a wide range of topics that relate to ectodermal dysplasias. These resources explain the syndromes, symptoms and suggested treatments. They offer tips on how to manage the conditions and cope with all aspects of the condition.
You can access and download the content simply by providing your name and email address. If you have questions for which you can’t find answers, call us at our office at 618-566-2020. We are happy to talk with you and share what we know. When you become an NFED member, we can also help provide additional resources and videos from our recent Family Conference.