We invite you to join our growing ectodermal dysplasias community of 8,100 families plus care providers, volunteers and friends who want to support our mission. You and your family will receive unwavering support, connections with other families, and access to the latest treatment and research information, including videos of educational workshops from our recent Family Conference.
Already a member? Update your profile with your latest contact information to get direct access to conference workshop videos.
We registered with NFED recently when our 2-year-old daughter Sara was diagnosed with HED. Thank you for your quick response in welcoming us into the NFED community. Hearing back from the organization so quickly was comforting and reassuring. It gave us a sense of security knowing there is an active, helpful, responsive community out there who understands our concerns. – Alisa and Greg
We are here, supporting you. Supporting each other.