Are you interested in organizing an event to raise awareness and funding to help us advance our mission? We can help find the right event for you and assist you with the details.

Families have told us that holding a fundraiser in their community empowered them to share their story, educate their friends, family and community, and take action to help everyone affected by ectodermal dysplasias.

Awareness and fundraising projects come in all shapes and sizes. Individuals, families and companies can host them. The key is to pick an event that interests you. Here are just a few events held in the past:

  • Art show
  • Bake sale
  • Car show
  • Golf tournament
  • Spaghetti dinner
  • Walk/run
  • Zumbathon
  • View the calendar of events to find other family fundraisers.

    Where to Begin

    Download our fundraising toolkit. It walks you through step-by-step how to hold an event and provides sample letters you can use for solicitation.

    Download These Tool Kits for Specific Events and Activities

    Contact Lea (618-566-6871) at the NFED. She can support you in your planning, assist in creating a webpage for your event and help market the event.

    Thank you for helping us fundraise to further advance our mission!