Learn how ectodermal dysplasia can be passed down in your family in this fun – yes fun! – presentation. You will better understand why a specific diagnosis is important and how to get one.
We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at firstname.lastname@example.org with the details so we can list it here.