We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
Date: Aug 12, 2020
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With 100+ different types of ectodermal dysplasias, understanding them all can be overwhelming! Watch this free webinar with pediatrician Tim Fete. He gives a comprehensive overview of the conditions to help you better understand what ectodermal dysplasias are, some of the most common types and what body parts can be affected.
Date: Oct 14, 2020
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For 30+ years, the National Foundation for Ectodermal Dysplasias (NFED) has led the charge to develop a treatment for the common type of ectodermal dysplasia, x-linked hypohidrotic ectodermal dysplasia (XLHED). For the past few years, we have worked with espeRare to help develop a unique, pre-natal treatment. Register for our free webinar to hear the latest progress on the trial, how to participate and what the results could mean for families affected by XLHED.
Date: Dec 9, 2020
7:00 pm
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The ectodermal dysplasias can affect the skin, hair, nails and sweat glands in lots of different ways. Watch this free webinar to learn about these symptoms, and how to manage and treat them to provide relief.
