We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
You are invited to join Ensuring Lasting Smiles Act (ELSA) advocates for our fourth NFED Advocacy Day on Capitol Hill on Wednesday, April 28, 2021. This year’s event is going to be virtual. Our goal is to educate legislators, ask them to co-sponsor the ELSA and ask them to help us move ELSA through Congress.
Whether you are new to ectodermal dysplasias or not, this webinar provides an extensive overview about these 100+ syndromes and how they affect the body.
Jamie and Hank Duke are hosting their 7th Annual Sweat It Out 5K to benefit the National Foundation for Ectodermal Dysplasias (NFED) in honor of their son, Nicholas, who is affected by hypohidrotic ectodermal dysplasia. This year YOU can Sweat Anywhere for Nick! In 2021, we have TWO OPTIONS for you. We will have a…
Attend this webinar to learn how to manage the dermatological symptoms caused by ectodermal dysplasias.
Learn what NFED programs can help you on your journey with ectodermal dysplasias. Plus, meet with other families who share your specific type to discuss your experiences.
Children affected by ectodermal dysplasias face a range of dental issues that require treatment. Learn from experts about when to start treatment and what your goals should be.
With more than 100 different types of ectodermal dysplasias, there is a long list of health concerns that can be involved. Learn common ones and how to treat them.
Join the Reidenouer family, the Vechhini family and B.A. Enterprise for this NFED fundraiser in New York.