We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

2021 International Ectodermal Dysplasias Research Conference

Date: Oct 21, 2021 to Oct 24, 2021
12:00 am

The NFED is sponsoring an international research conference in October 2021. The conference will bring together clinicians and researchers to present and discuss approaches and future directions for translating science to therapy for hereditary conditions that affect skin, eyes, hair and teeth. Our goal is to advance our ability to better manage these conditions through…

Webinar: All There is To Know About Genetics

Date: Nov 9, 2021
7:00 pm

Learn how ectodermal dysplasia can be passed down in your family in this fun – yes fun! – presentation. You will better understand why a specific diagnosis is important and how to get one.


Date: Apr 7, 2022
5:00 pm to 9:00 pm

Join the Mueller & Keene Families for a Farm-to-Table Dinner event tentatively set for April 2022 with music, activities and a silent auction to benefit the National Foundation for Ectodermal Dysplasias. LocationAcreage Cider House & Eatery1380 Horizon AveLafayette, CO 80026 Save the Date now postponed to April 2022. More details to follow soon…

2022 Family Conference

Date: Jul 14, 2022 to Jul 16, 2022
12:00 am to 12:00 am

The National Foundation for Ectodermal Dysplasias (NFED) Family Conference welcomes everyone affected by ectodermal dysplasias and their loved ones. Join us for three days of learning, growing and bonding over life with ectodermal dysplasias!