We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.


Date: Sep 10, 2022
7:00 am

The Swierczewski family is hosting their 26th Annual Bruno’s Golf Outing for NFED on Saturday, September 10th. The event is held in honor of Eddie Swierczewski, who is affected by hypohidrotic ectodermal dysplasia.  It is also held in memory of Eddie’s father, Bruce “Bruno” Swierczewski, who founded the tournament, and Fran Ann Swierczewski, mother of “Bruno” and grandmother of Eddie….

Minnetonka 5K 2022

Date: Sep 18, 2022
8:30 am to 12:00 pm

Karl & Nancy Nelsen and Tyler & Erin Nawrocki are hosting their Don’t Sweat It Walk/Run in Minnetonka, MN – and anywhere you want to walk/run – to raise awareness and funds for the National Foundation for Ectodermal Dysplasias. LocationShady Oak Beach5200 Shady Oak RdMinnetonka, MN 55343 Event ScheduleRegistration at 8:30 amKid’s Fun Walk/Run at…

Night for Extraordinary Dreams

Date: Oct 18, 2022
5:00 pm to 9:00 pm

Join the Mueller & Keene Families for a Farm-to-Table Dinner event with music, activities and a silent auction to benefit the National Foundation for Ectodermal Dysplasias. LocationAcreage Cider House & Eatery1380 Horizon AveLafayette, CO 80026

Virtual Advocacy Day with the Senate

Date: Oct 19, 2022
8:00 am to 6:00 pm

We’re backkkkkkkkkk….with our third Advocacy Day this year! You and your members are invited. Team ELSA is in a fight to the finish to get the Ensuring Lasting Smiles Act (S.754) (ELSA) passed in this Congress, which ends on January 3. Like any fight, it can take several rounds to win. And the clock on…