We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
Learn what NFED programs can help you on your journey with ectodermal dysplasias. Plus, meet with other families who share your specific type to discuss your experiences.
Children affected by ectodermal dysplasias face a range of dental issues that require treatment. Learn from experts about when to start treatment and what your goals should be.
With more than 100 different types of ectodermal dysplasias, there is a long list of health concerns that can be involved. Learn common ones and how to treat them.
Join the Reidenouer family, the Vechhini family and B.A. Enterprise for this NFED fundraiser in New York.
The NFED is sponsoring an international research conference in October 2021. The conference will bring together clinicians and researchers to present and discuss approaches and future directions for translating science to therapy for hereditary conditions that affect skin, eyes, hair and teeth. Our goal is to advance our ability to better manage these conditions through…
Learn how ectodermal dysplasia can be passed down in your family in this fun – yes fun! – presentation. You will better understand why a specific diagnosis is important and how to get one.