Date: Apr 1, 2019
12:00 am
Bring a smile to the person with ectodermal dysplasia that you love this April Fools Day.
We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
Alex’s Super Smiles 5K
Date: Apr 13, 2019
8:00 am
2019 Family Conference
Date: Jul 11, 2019 to
Jul 13, 2019
12:00 am
to
12:00 pm
The National Foundation for Ectodermal Dysplasias (NFED) Family Conference is for everyone affected by ectodermal dysplasias and their loved ones. Come and spend three full days that will enhance your life! Our caring staff and families will welcome you to the Windy City with open arms and understanding. You will quickly experience–not just know–that you…
Ectodermal Dysplasias Advocacy Day 2019
Date: Jul 16, 2019 to
Jul 17, 2019
12:00 am
You are invited to join us in Washington D.C. for our third Ectodermal Dysplasias Advocacy Day on Capitol Hill on Wednesday, July 17, 2019. Advocates will meet with their legislators about the need for the Ensuring Lasting Smiles Act. We encourage you to bring your children affected by ectodermal dysplasia. You will need to register…