Join the Nelsen and Nawrocki families for this fun, virtual 5k and auction!
We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at firstname.lastname@example.org with the details so we can list it here.
For 30+ years, the National Foundation for Ectodermal Dysplasias (NFED) has led the charge to develop a treatment for the common type of ectodermal dysplasia, x-linked hypohidrotic ectodermal dysplasia (XLHED). For the past few years, we have worked with espeRare to help develop a unique, pre-natal treatment. Register for our free webinar to hear the latest progress on the trial, how to participate and what the results could mean for families affected by XLHED.
ANNOUNCING THE 20th ANNIVERSARY OF OUR HALLOWEEN BASH! Finally, a fun reason to wear masks! Join us – virtually – for our biggest event of the year – hosted by Ruth and Keith Geismar. Since our very first event in 2000, the Halloween Bash has raised more than $4 million to provide treatment, support and…
The ectodermal dysplasias can affect the skin, hair, nails and sweat glands in lots of different ways. Watch this free webinar to learn about these symptoms, and how to manage and treat them to provide relief.