We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

Find Answers to Your Most Pressing Health Concerns Caused by Ectodermal Dysplasias

Date: Apr 8, 2020
7:00 pm to 8:00 pm

Do you have questions about your health as it relates to ectodermal dysplasias? Get answers in this free webinar. Drs. Butcher and Fete will be live to answer as many as they can. They will also present information about common health concerns both children and adults who have ectodermal dysplasia experience.

Postponed: Alex’s Super Smiles 5K

Date: Apr 18, 2020
8:00 am

Alex’s Super Smiles 5k hosted by The Carroll Family in honor of their son, Alex, who is affected by odonto-onycho-dermal dysplasia syndrome.

Postponed: Keene’s Crawfish Boil 2020

Date: May 16, 2020
4:00 pm to 10:00 pm

The Keene family is hosting a Crawfish Boil to raise money for the National Foundation for Ectodermal Dysplasias. Learn how you can donate and attend.

6th Annual Sweat It Out 5K

Date: Jun 6, 2020
7:00 am to 11:00 am

amie and Hank Duke are hosting their 6th Annual Sweat It Out 5K to benefit the National Foundation for Ectodermal Dysplasias (NFED) in honor of their son, Nicholas, who is affected by hypohidrotic ectodermal dysplasia.

How to Treat Nasal Rocks, Ear Wax and Other ENT Issues

Date: Jun 10, 2020
7:00 pm to 8:00 pm

Does your child have problems with smelly nasal discharge? Have you noticed that ear wax accumulation is affecting your hearing? Dr. Hopkins will present information on the different ways that ectodermal dysplasias can affect the nose, ears and throat. Tune in to hear suggestions for how to treat those concerns.

Canceled: 2020 Family Conference

Date: Jun 22, 2020 to Jun 24, 2020
12:00 am

To keep our families healthy and safe, the 2020 Family Conference scheduled for June 22-24 in Washington D.C. has been canceled due to the coronavirus (COVID-19) pandemic.

Virtual Advocacy Day

Date: Jun 24, 2020
8:00 am to 5:00 pm

The NFED Advocacy Day is going virtual. Raise your voice in advocacy from the comfort of your home!

Nikko for NFED 2020

Date: Jun 27, 2020
2:00 pm to 8:00 pm

The Reidenouer family is hosting a fundraiser to benefit the NFED in honor of Nikko Vecchini. Find out how you can support and register for this event.