We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

8th Annual Sweat It Out 5K

Date: Jun 4, 2022
7:00 am to 12:00 pm

Jamie Duke is hosting her 8th Annual Sweat It Out 5K to benefit the National Foundation for Ectodermal Dysplasias (NFED) in honor of her son Nick, who is affected by hypohidrotic ectodermal dysplasia. This year YOU can Sweat Anywhere for Nick! There are TWO OPTIONS for you: a “Live Race” on Saturday, June 4, 2022…

Virtual Advocacy Day with the Senate

Date: Jun 21, 2022
8:00 am to 6:00 pm

You are invited to join Ensuring Lasting Smiles Act (ELSA) advocates for our Advocacy Day with the Senate on Tuesday, June 21, 2022. This event will again be virtual. Our goal is to ask the U.S. Senate to make ELSA (S. 754) a priority and move it through committee and to a vote. This event…

2022 Family Conference

Date: Jul 14, 2022 to Jul 16, 2022
12:00 am to 12:00 am

The National Foundation for Ectodermal Dysplasias (NFED) Family Conference welcomes everyone affected by ectodermal dysplasias and their loved ones. Join us for three days of learning, growing and bonding over life with ectodermal dysplasias!