We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
The NFED Family Conference is for everyone affected by ectodermal dysplasias and their loved ones. Join us for a weekend of learning and fun!
B.A. Enterprise and the Reidenouer and Vecchini families are hosting this fundraiser in honor of Nikko Vecchini who is affected by hypohidrotic ectodermal dysplasia. Guests will enjoy sliced prime rib sandwiches and BBQ chicken plus side dishes. The event will feature several raffles including one for a King Size Harley Davidson t-shirt quilt and one…
We are thrilled to be going back to Capitol Hill to advocate in-person for the Ensuring Lasting Smiles Act (ELSA). Please join us in Washington, D.C., September 18 – 19, to meet with your legislators about the importance of ELSA for individuals and families affected by congenital anomalies. Legislators have consistently told us that hearing…