We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

Nikko for NFED 2021

Date: Sep 18, 2021
2:00 pm to 8:00 pm

Join the Reidenouer family, the Vechhini family and B.A. Enterprise for this NFED fundraiser in New York.

2021 International Ectodermal Dysplasias Research Conference

Date: Oct 21, 2021 to Oct 24, 2021
12:00 am

The NFED is sponsoring an international research conference in October 2021. The conference will bring together clinicians and researchers to present and discuss approaches and future directions for translating science to therapy for hereditary conditions that affect skin, eyes, hair and teeth. Our goal is to advance our ability to better manage these conditions through…

Webinar: All There is To Know About Genetics

Date: Nov 9, 2021
7:00 pm

Learn how ectodermal dysplasia can be passed down in your family in this fun – yes fun! – presentation. You will better understand why a specific diagnosis is important and how to get one.