We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

Alex’s Super Smiles 5k 2023

Date: Apr 15, 2023
8:45 am to 12:00 pm

Hosted by Julie and Tim Carroll This 4th annual, in-person, family fundraising event is in honor of Alex’s 7th birthday. Alex was diagnosed with Odonoonychodermal Dysplasia. He is a spunky, active boy and doesn’t let this genetic condition define him. LocationStubbs Park255 W Spring Valley PikeWashington Township, OH 45458 Event ScheduleRegistration at 8:45 a.m.Walk/Run at…

9th Annual Sweat It Out 5k

Date: Jun 3, 2023
7:00 am to 12:00 pm

Jamie Duke is hosting her 9th Annual Sweat It Out 5k to benefit the National Foundation for Ectodermal Dysplasias (NFED) in honor of her son Nick, who is affected by hypohidrotic ectodermal dysplasias. This year YOU can Sweat Anywhere for Nick! There are TWO OPTIONS for you: a “Live Race” on Saturday, June 3, 2023…

2023 Family Conference

Date: Jul 14, 2023 to Jul 16, 2023
11:00 am to 2:00 pm

The NFED Family Conference is for everyone affected by ectodermal dysplasias and their loved ones. Join us for a weekend of learning and fun!