We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

Ectodermal Dysplasias Advocacy Day 2019

Date: Jul 16, 2019 to Jul 17, 2019
12:00 am

You are invited to join us in Washington D.C. for our third Ectodermal Dysplasias Advocacy Day on Capitol Hill on Wednesday, July 17, 2019. Advocates will meet with their legislators about the need for the Ensuring Lasting Smiles Act. We encourage you to bring your children affected by ectodermal dysplasia. You will need to register…