We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

Oliver’s Bites and Brews

Date: Sep 7, 2019
4:00 pm to 8:00 pm

Matt and Vanessa Nehrkorn invite you to Salem Ale Works in Salem, Oregon for a night of good eats, drinks, corn hole games, raffles and the Ducks game.

Don’t Sweat It Walk/Run – Minnetonka, MN 2019

Date: Sep 15, 2019
9:00 am

NFED Board member, Karl Nelsen, and his family are on a mission to raise awareness and funds for ectodermal dysplasias. Join their family to participate, volunteer or donate.

Jayden’s Halloween Hustle 2019

Date: Oct 27, 2019
9:00 am

The Pagano family is hosting this 5K Run/Walk in Media, Pennsylvania in honor of Jayden Clark, who is affected by AEC syndrome.