We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

Virtual Advocacy Day On The Hill

Date: Apr 28, 2021
8:00 am to 6:00 pm

You are invited to join Ensuring Lasting Smiles Act (ELSA) advocates for our fourth NFED Advocacy Day on Capitol Hill on Wednesday, April 28, 2021. This year’s event is going to be virtual. Our goal is to educate legislators, ask them to co-sponsor the ELSA and ask them to help us move ELSA through Congress.

7th Annual Sweat It Out 5K

Date: Jun 5, 2021
7:00 am to 11:00 am

Jamie and Hank Duke are hosting their 7th Annual Sweat It Out 5K to benefit the National Foundation for Ectodermal Dysplasias (NFED) in honor of their son, Nicholas, who is affected by hypohidrotic ectodermal dysplasia. This year YOU can Sweat Anywhere for Nick! In 2021, we have TWO OPTIONS for you. We will have a…

Nikko for NFED 2021

Date: Sep 18, 2021
2:00 pm to 8:00 pm

Join the Reidenouer family, the Vechhini family and B.A. Enterprise for this NFED fundraiser in New York.