We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

Virtual Minnetonka 5K 2020

Date: Sep 26, 2020
8:30 am to 10:30 am

Join the Nelsen and Nawrocki families for this fun, virtual 5k and auction!

Learn How New XLHED Clinical Trial Could Affect Future Generations of Your Family

Date: Oct 14, 2020
7:00 pm to 8:00 pm

For 30+ years, the National Foundation for Ectodermal Dysplasias (NFED) has led the charge to develop a treatment for the common type of ectodermal dysplasia, x-linked hypohidrotic ectodermal dysplasia (XLHED). For the past few years, we have worked with espeRare to help develop a unique, pre-natal treatment. Register for our free webinar to hear the latest progress on the trial, how to participate and what the results could mean for families affected by XLHED.