We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

Virtual Advocacy Day On The Hill

Date: Mar 30, 2022
8:00 am to 6:00 pm

You are invited to join Ensuring Lasting Smiles Act (ELSA) advocates for our fifth NFED Advocacy Day on Capitol Hill on Wednesday, March 30, 2022. This year’s event will again be virtual. Our goal is to educate legislators, ask them to co-sponsor the ELSA and ask them to help us move ELSA through Congress. This…

Night for Extraordinary Dreams – Postponed to Later Date

Date: Apr 7, 2022
5:00 pm to 9:00 pm

Join the Mueller & Keene Families for a Farm-to-Table Dinner event with music, activities and a silent auction to benefit the National Foundation for Ectodermal Dysplasias. This event has been postponed to a later date, yet to be determined. LocationAcreage Cider House & Eatery1380 Horizon AveLafayette, CO 80026

Alex’s Super Smiles 5k 2022

Date: Apr 23, 2022
9:00 am

Hosted by Julie and Tim Carroll This 3rd annual family fundraising in person event is in honor of Alex’s 6th birthday. Alex was diagnosed with Odonoonychodermal Dysplasia. He is a spunky 5 year old and doesn’t let this genetic condition define him. He is active and loves to play. Come out to Stubbs Park in…

2022 Family Conference

Date: Jul 14, 2022 to Jul 16, 2022
12:00 am to 12:00 am

The National Foundation for Ectodermal Dysplasias (NFED) Family Conference welcomes everyone affected by ectodermal dysplasias and their loved ones. Join us for three days of learning, growing and bonding over life with ectodermal dysplasias!