We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

5th Annual Sweat It Out 5K

Date: Jun 1, 2019
7:00 am

Jamie and Hank Duke are hosting their 5th Annual Sweat It Out 5K in honor of their son, Nicholas, who is affected by hypohidrotic ectodermal dysplasia.

15th Annual Rally for Ally

Date: Jun 8, 2019
11:00 am to 2:30 pm

The Matus, George and Kelso families are hosting their 15th Annual Rally for Ally in honor of Ally Kelso, who is affected by ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. Come to Nottoway Park to enjoy the delicious food, kids’ activities, raffles, silent auction and and loads of fun. Location Nottoway Park9537 Courthouse Rd.Vienna, VA 22181 For More…

2019 Family Conference

Date: Jul 11, 2019 to Jul 13, 2019
12:00 am to 12:00 pm

The National Foundation for Ectodermal Dysplasias (NFED) Family Conference is for everyone affected by ectodermal dysplasias and their loved ones. Come and spend three full days that will enhance your life! Our caring staff and families will welcome you to the Windy City with open arms and understanding. You will quickly experience–not just know–that you…

Ectodermal Dysplasias Advocacy Day 2019

Date: Jul 16, 2019 to Jul 17, 2019
12:00 am

You are invited to join us in Washington D.C. for our third Ectodermal Dysplasias Advocacy Day on Capitol Hill on Wednesday, July 17, 2019. Advocates will meet with their legislators about the need for the Ensuring Lasting Smiles Act. We encourage you to bring your children affected by ectodermal dysplasia. You will need to register…