24th Annual Bruno’s Golf Outing for NFED hosted by the Swierczewski family in honor of Eddie Swierczewski and in memory of Bruce “Bruno” Swierczewski.
We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at firstname.lastname@example.org with the details so we can list it here.
Matt and Vanessa Nehrkorn invite you to Salem Ale Works in Salem, Oregon for a night of good eats, drinks, corn hole games, raffles and the Ducks game.
NFED Board member, Karl Nelsen, and his family are on a mission to raise awareness and funds for ectodermal dysplasias. Join their family to participate, volunteer or donate.
The Geismar family is hosting the 19th Annual Halloween Bash. You are invited to participate in this online event which includes a silent auction, journal and opportunity to donate.
The Pagano family is hosting this 5K Run/Walk in Media, Pennsylvania in honor of Jayden Clark, who is affected by AEC syndrome.