We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.
Do you have questions about your health as it relates to ectodermal dysplasias? Get answers in this free webinar. Drs. Butcher and Fete will be live to answer as many as they can. They will also present information about common health concerns both children and adults who have ectodermal dysplasia experience.
Alex’s Super Smiles 5k hosted by The Carroll Family in honor of their son, Alex, who is affected by odonto-onycho-dermal dysplasia syndrome.
The Keene family is hosting a Crawfish Boil to raise money for the National Foundation for Ectodermal Dysplasias. Learn how you can donate and attend.
amie and Hank Duke are hosting their 6th Annual Sweat It Out 5K to benefit the National Foundation for Ectodermal Dysplasias (NFED) in honor of their son, Nicholas, who is affected by hypohidrotic ectodermal dysplasia.
Does your child have problems with smelly nasal discharge? Have you noticed that ear wax accumulation is affecting your hearing? Dr. Hopkins will present information on the different ways that ectodermal dysplasias can affect the nose, ears and throat. Tune in to hear suggestions for how to treat those concerns.
To keep our families healthy and safe, the 2020 Family Conference scheduled for June 22-24 in Washington D.C. has been canceled due to the coronavirus (COVID-19) pandemic.
The NFED Advocacy Day is going virtual. Raise your voice in advocacy from the comfort of your home!
The Reidenouer family is hosting a fundraiser to benefit the NFED in honor of Nikko Vecchini. Find out how you can support and register for this event.