We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

10th Annual Sweat It Out 5k

Date: Jun 1, 2024
7:00 am to 12:00 pm

Jamie Duke is hosting her 10th Annual Sweat It Out 5k to benefit the National Foundation for Ectodermal Dysplasias (NFED) in honor of her son Nick, who is affected by hypohidrotic ectodermal dysplasias. This year YOU can Sweat Anywhere for Nick! There are TWO OPTIONS for you: a “Live Race” and a “Virtual Event”. We…

Stand Together NFED Advocacy Conference 2024

Date: Jul 7, 2024 to Jul 9, 2024
12:00 am

BE PART OF SOMETHING TRULY SPECIAL AT NFED’S 2024 STAND TOGETHER ADVOCACY CONFERENCE! Don’t let this opportunity pass you by! Join us in standing together and making a difference for those living with ectodermal dysplasia and other congenital anomalies. It’s not just a conference; it’s a reunion with old friends and a warm welcome to…