We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at info@nfed.org with the details so we can list it here.

Jayden’s Halloween Hustle 2019

Date: Oct 27, 2019
9:00 am

The Pagano family is hosting this 5K Run/Walk in Media, Pennsylvania in honor of Jayden Clark, who is affected by AEC syndrome.

Alex’s Super Smiles 5K

Date: Apr 18, 2020
8:00 am

Alex’s Super Smiles 5k hosted by The Carroll Family in honor of their son, Alex, who is affected by odonto-onycho-dermal dysplasia syndrome.