The Geismar family is hosting the 19th Annual Halloween Bash. You are invited to participate in this online event which includes a silent auction, journal and opportunity to donate.
We invite you to attend or support the events going on within our NFED community. Family Conferences, NFED @Home family gatherings, fundraisers, or awareness events are listed. If you are hosting a walk, golf tournament, BBQ etc. for the NFED, contact us at firstname.lastname@example.org with the details so we can list it here.
The Pagano family is hosting this 5K Run/Walk in Media, Pennsylvania in honor of Jayden Clark, who is affected by AEC syndrome.
Alex’s Super Smiles 5k hosted by The Carroll Family in honor of their son, Alex, who is affected by odonto-onycho-dermal dysplasia syndrome.