Ways to Advocate

Next Steps

Now that you have contacted your legislator, we have lots of great information on how to meet your legislators close to home. Peruse our tips for preparing for your advocacy meeting. We walk you through what to expect, items to take along and action to take afterwards.

Advocacy resources

You will also want to check out our advocacy resources. We have sample personal stories you can read that will help you in preparing to share your own story with ectodermal dysplasia, whether that’s in an email, on a phone call or in person. And don’t forget to download our advocacy card, which you can use as a leave behind at your legislator meeting.

The ELSA Advocates Facebook Group is a great way to connect with fellow advocates, ask questions and share successes or challenges. Our staff moderates the group and shares advocacy updates.

Join the Conversation

Want to Make More Impact?

We have volunteers serving as advocacy leads in the following states. If you would like to be a state lead or want to contact the lead in your state, email Greg Klimovitz, NFED Executive Director.

Serve As A State Lead