In the United States, health plans systematically and routinely deny claims and appeals for medically-necessary procedures related to congenital abnormalities or birth defects. This practice leaves families the burden of how to pay for their child’s treatment or procedures that are required to repair function — and to help kids enjoy happier, healthier childhoods.
About 4 percent of children born in the U.S. have congenital abnormalities or birth defects that affect the way they develop, function, or look, often for the rest of their lives.
Sen. Tammy Baldwin (D-WI) and Sen. Joni Ernst (R-IA), along with Representatives Collin Peterson (D-MN) and David Young (R-IA) introduced the bipartisan Ensuring Last Smiles Act (ELSA) in 2018 to address these coverage denials and ensure that children suffering from birth defects and anomalies get the treatment they need.
The legislation would:
- Ensure that all group and individual health plans cover medically necessary services, including needed dental procedures, as a result of congenital abnormalities,
- Stipulate that such coverage include services and procedures that functionally repair or restore any missing or abnormal body part that is medically necessary to achieve normal body functioning or appearance, and clarifies that this includes adjunctive dental, orthodontic or prosthodontic support; and
- Exclude cosmetic procedures or surgery
How You Can Help
Together, we can improve the quality of life for all individuals affected by these disorders. Organizations that become official supporters of the Ensuring Lasting Smiles Act help show our legislators that this life-changing issue requires urgent attention. By joining us, you’ll add your voice to a message that Americans care about fair and just medical treatment for children affected by birth defects.
For our efforts to be successful, we need supporters like you who will reach out to policymakers about ELSA. It’s equally powerful to ask your organization’s constituents and lobbyists to contact their legislators, too.
We’re already seeing incredible support from the American Association of Oral and Maxillofacial Surgeons and American Society of Plastic Surgeons.
Both organizations have garnered support from legislators and held Hill Days to raise awareness for ELSA, effectively bringing professional and patient voices to the need for this legislation.
Show Your Support
Join the National Foundation for Ectodermal Dysplasias and the organizations listed below in helping families affected by all congenital anomalies.
We are proud to be supporting the Ensuring Lasting Smiles Act along side the following organizations:
- Academy of General Dentistry
- American Academy of Dermatology Association
- American Academy of Facial Plastic and Reconstructive Surgery
- American Academy of Neurology
- American Academy of Oral and Maxillofacial Pathology
- American Academy of Oral and Maxillofacial Radiology
- American Academy of Pediatric Dentistry
- American Association of Oral and Maxillofacial Surgeons
- American Association of Orthodontists
- American Association of Women Dentists
- American College of Prosthodontists
- American College of Surgeons
- American Dental Association
- American Society of Dentist Anesthesiologists
- American Society of Maxillofacial Surgeons
- American Society of Plastic Surgeons
- CCD Smiles
- Children’s Hospital of Wisconsin
- Derma Care Access Network
- EveryLife Foundation for Rare Diseases
- FACES: The National Craniofacial Association
- Foundation for Ichthyosis and Related Skin Types, Inc. (FIRST)
- Genetic Alliance
- International Pemphigus and Pemphigoid Foundation
- March of Dimes
- Moebius Syndrome Foundation
- National Organization for Rare Disorders
- Operation Smile
- Pathways for Rare and Orphan Studies
- Project Accessible Oral Health
- Rare & Undiagnosed Network
- The APS Type 1 Foundation Inc.
- The Marfan Foundation
- The Sturge-Weber Foundation
Become a Supporter of ELSA
When you sign-on to support the Ensuring Lasting Smiles Act (ELSA), your organization agrees to officially support and advocate for the bill. We’ll add your organization’s name to our growing list of supporters and include it whenever we reference the groups supporting this legislation. On occasion, NFED will also send email updates to share the latest ELSA news and progress.
For questions about supporting ELSA, please contact Mary Fete at firstname.lastname@example.org.