Since the Ensuring Lasting Smiles Act (ELSA) was re-introduced, it has received incredible bi-partisan support in the U.S. House of Representatives and the U.S. Senate.

During our Advocacy Day on the Hill events, our advocates fight for ELSA to get passed in the current session of the U.S. Congress, and on Monday, April 4, 2022, ELSA was passed by the U.S. House of Representatives!

This federal legislation would require private insurance to cover medically necessary services resulting from congenital anomalies.

Join Us: Virtual Advocacy Day With The Senate

Now that ELSA has been passed in the House, we need the Senate to make it a priority. Please join us virtually on June 21 to let your Senators know how important ELSA (S.754) is to you, your family, your patients and community.

We feel that patient and provider stories go hand in hand with our efforts and provide legislators with a better understanding of the importance of ELSA. We invite and encourage our 70+ ELSA supporting organizations and others to join us and advocate for ELSA during this event.

If we don’t get ELSA passed in 2022, all of our hard work to get ELSA passed in the House and over the past few years will be lost. We need your help, NOW!


What to Expect During Virtual Advocacy Day

Advocates who join us on Advocacy Day will have at least two virtual meetings scheduled that day, one with each senator from their state. There will also be other advocates on the meeting, so you won’t be alone. Because we will not have final meeting schedules until a week prior to the event, we highly recommend you clear your schedule all day on Tuesday, June 21, to accommodate the scheduled meeting times.

It is extremely important that registered advocates keep their schedule and participate in the full day. As you can imagine, senators and their staff are very busy, and we want to appreciate and respect their time by showing up at our scheduled times. Please make every effort to attend the meetings after you register. If there is a time conflict or you need to remove your registration, please contact as soon as you can. 

You will access your meeting schedule and connect virtually with the senators or their staff member(s) using an online platform. How to access and use the platform will be covered during the mandatory training on June 14 from 7 p.m. to 8:30 p.m. CT (you will receive information on how to join this Zoom webinar via email).

During the meeting, you will have approximately two minutes to tell your personal or patient’s story about what ELSA would mean to you and your family or patients, and why we are asking the Senate to make the bill a priority. At the end of the day, all participating advocates are invited to a Zoom party to celebrate everyone’s hard work!

Sponsor Advocacy Day With The Senate

It takes a lot of resources to host a successful advocacy day. Your sponsorship will ensure that we can continue to offer valuable advocacy training and resources in addition to scheduling virtual legislative meetings for ELSA advocates. Any donation of $500 or more will be recognized in our sponsorship posts. 

You can submit your sponsorship at the time of registration. Can’t join us on Advocacy Day? Use the button below to support the event with a donation.

Please contact Becky at for more information about the event and/or sponsorships.

Sponsor Only

The NFED’s 2022 Advocacy Day on Capitol Hill was a great success! Nearly 300 advocates met with their legislators in over 200 meetings to discuss ELSA on Wednesday, March 30, 2022.

This year’s first Advocacy Day took place just five days prior to ELSA going to the U.S. House of Representatives for a vote. Because our advocates raised their voices and bravely told their stories, the House passed ELSA! This is an extraordinary milestone for this life-changing bill, but our work is not done. To become a law, ELSA must be passed by the U.S. Senate and then signed into law by the President.

Take Action Now!

Please contact your U.S. Senators NOW and ask them to make the Ensuring Lasting Smiles Act (S. 754) a priority. We want them to encourage members of the H.E.L.P. Committee to move the bill forward and to ask Senate leadership to move the bill to the floor for a vote.

Here’s What You Can Do:

  1. Use our quick and easy webtool to send a message directly to your Senators. This only takes a couple of minutes!
  2. Post about the #EnsuringLastingSmiles Act on social media, tag your senators, and ask them to make ELSA a priority.
  3. Tell your friends, family and colleagues how important ELSA is to you and ask them to reach out to their Senators in support of this life-changing legislation.
  4. Register for Advocacy Day with the Senate happening on Tuesday, June 21!

Thank You to our Sponsors!