The National Foundation for Ectodermal Dysplasias (NFED) annually hosts Advocacy Day on Capitol Hill. It’s a two-day event for individuals affected by ectodermal dysplasias and their loved ones from all over the United States to gather in Washington D.C. and raise their voices.

Advocates affected by other congenital anomalies are welcome to attend, too! We advocate for health benefits for the medical and dental treatments of ectodermal dysplasias and all congenital anomalies. Specifically, we call on Congress and ask for their support of the Ensuring Lasting Smiles Act.

2019 NFED Advocacy Day

We had 83 people from 21 states join us on Capitol Hill in Washington D.C. for our third NFED Advocacy Day on July 17. Our virtual advocates at home also took action by emailing their members of Congress.

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2019 NFED Advocacy Day on Capitol Hill

One Voice Can Make a Difference

Training Our Advocates to Speak Up

The Walkers Go To Washington

Latham Advocates to Get Teeth

Carver Advocates for the Ensuring Lasting Smiles Act