Advocating for Federal Legislation

The biggest complaint we hear from families is that their health insurance company or their employer sponsored self-insured health plan has denied benefits for necessary medical care and treatment regarding teeth. Our mission is to put an end to this.

Our goal is clear. We want the federal government to pass a law guaranteeing the payment of health insurance benefits for necessary medical care and treatment due to congenital anomaly.

This law will provide coverage from the moment of birth and will consider congenital anomalies and birth abnormalities as an injury or sickness and cover the functional repair or restoration of any body part, including the teeth and the bone that holds them, when necessary to achieve normal body functioning.

An Ally In Our Corner

We are excited that Senator Tammy Baldwin from Wisconsin heard us and cares enough to take action. She understands our challenges, struggling with insurance coverage for medically necessary dental treatment.

Senator Baldwin will help us raise awareness for ectodermal dysplasias on Capitol Hill and plans to introduce a Senate Resolution highlighting key information about ectodermal dysplasias. This resolution will educate our legislators.

Ectodermal Dysplasias Advocacy Day on Capitol Hill

We will kick off this initiative with Advocacy Day on Capitol Hill on Wednesday, July 19, 2017. Join us.

Learn more about Advocacy Day on Capitol Hill

What You Can Do

It is important now more than ever for you to get involved in our family-driven advocacy initiative and fight for change. Watch closely for future announcements on how you can help and share your story with legislators. We need everyone to work together to make this happen.