We are pleased to announce that we are launching a new initiative. Our goal is clear. We want the federal government to pass a law guaranteeing the payment of health insurance benefits for necessary medical care and treatment due to congenital anomaly.

This law will provide coverage from the moment of birth and will consider congenital anomalies and birth abnormalities as an injury or sickness and cover the functional repair or restoration of any body part, including the teeth and the bone that holds them, when necessary to achieve normal body functioning.

The biggest complaint we hear from families is that their health insurance company or their employer sponsored self-insured health plan has denied benefits for necessary medical care and treatment regarding teeth. Our mission is to put an end to this.

Ectodermal Dysplasias Advocacy Day on Capitol Hill

We will kick off this initiative with Advocacy Day on Capitol Hill on Wednesday, July 19, 2017. Join us.

Learn more about Advocacy Day on Capitol Hill