We are excited to announce that we are launching a new, multi-year initiative to tackle state insurance coverage for the dental care of ectodermal dysplasias.

The biggest complaint we hear from families is that their medical insurance has denied benefits for the dental care associated with ectodermal dysplasias. Companies say the work is cosmetic. We know the importance of having teeth is far beyond cosmetic!

Advocacy Day on Capitol Hill

Currently, we mentor families on how to navigate the appeals process which can take years. Families can be successful but it takes an enormous amount of time and work. We are taking a new approach to creating systemic and lasting change for our families. To accomplish this, we must work to have legislation in each state that mandates medical benefits for the dental care of ectodermal dysplasias because they are genetic conditions.

Advocating for this change in the states is a massive undertaking that will take enormous resources and many years.

We will kick off this campaign with Advocacy Day on Capitol Hill on Wednesday, July 19, 2017, when we will raise our voices high to our state lawmakers.

Our day on the Hill is only the first step. We are committed to this initiative for the long term.

Learn more about Advocacy Day on Capitol Hill