Date: July 13, 2021
Time: 7:00 pm

Presenter: Mary Fete, M.S.N., R.N., C.C.M.

Duration: 60 minutes

Price: $10

In the first part of the webinar, the NFED’s executive director, Mary Fete will present information about the ways that the Foundation can help you and your family. Learn about what our extensive programs and resources and how you can access them.

Then, you will be placed in a breakout room based on what syndrome affects you or your family. If you don’t know what specific type you have, you will meet with other families who also have an unknown diagnosis.

In this chat session, you get the opportunity to share your story, ask questions and discuss issues specific to your syndrome. It’s a great opportunity to network with other families!

About the Expert

Mary Fete has served as the executive director of the National Foundation for Ectodermal Dysplasias since 2014 and has been on staff since 2002.  She brings two decades of nursing and case management experience as a registered nurse in a variety of specialties and practice areas. She also has mentored new nurses, developed education programs and curriculum for nurses, and provided education for professionals, patients, and families.

How to Register

You must register by noon Central Standard Time on July 13 to attend.

Register Now

Please Note: This webinar will be recorded. If you cannot attend the webinar live, you must still register for the webinar to be sent a link to the recording after the webinar is over. Recordings will be available for seven days following the day of the webinar.

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Disclaimer: This webinar is not intended as a substitute for medical advice. Only a healthcare provider with a full medical history may determine the proper treatment options. Opinions shared do not necessarily reflect those of the NFED. Topics, speakers and date are subject to change.