Date: July 9, 2020
Time: 7:00 pm  to  9:00 pm

Live Webinar

Duration: Two Hours

Price: Free

Is there anything better than knowing you are not alone when it comes to living with Goltz syndrome? We know you just said, “Nope!”

That’s why we are excited to bring families affected by Goltz syndrome (also known as focal dermal hypoplasia) together in this webinar via Zoom.

Two to three families will briefly share their story with Goltz syndrome to begin. Next, it’s your turn to talk! You can discuss your concerns, ask questions or simply chat about how Goltz has affected your family.

Get ready to not only learn but to share your own wisdom!

This webinar will NOT be recorded so you must participate live.

Sign Up

What topics would you like to hear discussed?

Once you have signed up, next we’d like to hear what three topics related to Goltz syndrome you would like to hear discussed.


If you have any questions about this webinar, contact Kelley at or 618-566-2020.

Disclaimer: This webinar is not intended as a substitute for medical advice. Only a healthcare provider with a full medical history may determine the proper treatment options. Opinions shared do not necessarily reflect those of the NFED. Topics, speakers and date are subject to change.