Date: July 16, 2020
Time: 7:00 pm  to  9:00 pm

Live Webinar

Duration: Two Hours

Price: Free

There is power and comfort in numbers when you are living affected by ectrodactyly-ectodermal dysplasia-clefting (EEC) syndrome. That’s why we have created this opportunity for you to hangout and share with EEC families from around the world. Families affected by acro–dermato–ungual–lacrimal–tooth (ADULT) syndrome and limb-mammary syndrome are also welcome to participate.

Whether it’s talking about how you treat dry eyes or how to teach your little one to tie his shoes, your experience can help another person.

Two to three people will begin the webinar by sharing their story. Then, it’s your turn! You can ask questions, talk about your EEC experience or share something that has worked for you.

Get ready to not only learn but share your own wisdom!

This webinar will NOT be recorded so you must participate live.


What topics would you like to hear discussed?

Once you have signed up, next we’d like to hear what three topics related to EEC syndrome you would like to hear discussed.


If you have any questions about this webinar, contact Kelley at or 618-566-2020.

Disclaimer: This webinar is not intended as a substitute for medical advice. Only a healthcare provider with a full medical history may determine the proper treatment options. Opinions shared do not necessarily reflect those of the NFED. Topics, speakers and date are subject to change.