Date: November 9, 2021
Time: 7:00 pm

Presenters: Pilar Magoulas, CGC and Virginia P. Sybert, M.D.

Duration: 60 minutes

Price: $10

Genetics can be complex and overwhelming. But, you will never have more fun learning about genetics than you will in this webinar with Dr. Sybert! She brings her unique teaching approach to make it easier to understand.

She and Ms. Magoulas will team present to explain the difference between genes and chromosomes and how they can change to cause ectodermal dysplasias. They will teach you the different ways that the ectodermal dysplasias can be inherited, the benefits of a specific diagnosis, and how to diagnose ectodermal dysplasias including clinical diagnosis and genetic testing.

Also, you will better understand the benefits of genetic counseling and what you can expect. Don’t miss this fun and interactive webinar!

About the Experts

Pilar L. Magoulas, C.G.C. is a genetic counselor, assistant professor, and the Genetics Clinic Manager at Texas Children’s Hospital and Baylor College of Medicine. She also serves as Chief of the Division of Genetic Counseling in the Department of Molecular and Human Genetics at Baylor College of Medicine.  Her primary responsibilities include coordination of the inpatient consultation service, managing the Genetics clinic at Texas Children’s Hospital, and supervising all of the Genetics office staff, genetic counselors, research coordinators, and nurses. She received her BS degree in psychology from the University of Florida and obtained her MS in genetic counseling from Northwestern University in Chicago, Illinois in 2003. Pilar also serves on the Board of Directors for a rare syndrome support group called, Cardio-facio-cutaneous syndrome (CFC International), where she was one of the first and only non-parent board members, and serves as a medical liaison for RASopathies Network, USA – a non-profit organization for a group of rare genetic syndromes. Some of her greatest joys have been getting to know the kids and families affected with rare genetic conditions and by attending the family conferences, usually with her own family in tow. She has served on the NFED Scientific Advisory Council since 2015.

Virginia P. Sybert M.D. is Clinical Professor in Medical Genetics at the University of Washington and a retired pediatric dermatologist at Kaiser in Seattle, Washington. She is an international recognized expert in inherited skin disorders. She was one of the original members of the National Foundation for Ectodermal Dysplasias Scientific Advisory Council, serving from 1983 – 2006. Since, she has continued to volunteer and support the Foundation. She has published numerous articles on ectodermal dysplasias in the Journal of Pediatrics and Pediatric Dermatology; authored an award-winning book titled Genetic Skin Disorders; and chapters Early Diagnosis of Ectodermal Dysplasia in Birth Defects Original Articles series and in Recent Advances in Ectodermal Dysplasias. She has been an Assistant Editor for Pediatric Dermatology and has served on the Editorial Boards of American Journal of Human Genetics, Clinical Dysmorphology and Experimental Dermatology. She has been listed in the Best Doctors in America since 1996 and has won the Outstanding Teacher Award from the Pediatric Housestaff at the University of Washington. SHE LOVES THE NFED TO BITS!

How to Register

You must register by noon Central Standard Time on November 9 to attend.

Register Now

Please Note: This webinar will be recorded. If you cannot attend the webinar live, you must still register for the webinar to be sent a link to the recording after the webinar is over. Recordings will be available for seven days following the day of the webinar.

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Disclaimer: This webinar is not intended as a substitute for medical advice. Only a healthcare provider with a full medical history may determine the proper treatment options. Opinions shared do not necessarily reflect those of the NFED.