The NFED Advocacy Day is going virtual. We invite you to join advocates from around the nation on Wednesday, June 24, 2020.
Raise your voice in advocacy from the comfort of your home! To keep our families safe during the coronavirus pandemic and enable more advocates to participate, we will not be having an in-person event in Washington D.C. this year.
During our Virtual Advocacy Day, we’ll be educating legislators about ectodermal dysplasias and fighting to get the Ensuring Lasting Smiles Act (ELSA) passed in this session of the U.S. Congress. Advocates will speak to their senators and representatives through pre-arranged phone calls.