Two girls affected by ectodermal dysplasia. One girl has ponytails and is next to her labrador retriever.
Date: September 26, 2020
Time: 8:30 am  to  10:30 am

Karl and Nancy Nelsen and Tyler and Erin Nawrocki are hosting their first virtual walk/run in Minnetonka, Minnesota – and anywhere you want to walk/run – to raise awareness and funds for the National Foundation for Ectodermal Dysplasias.

They will also have an online auction and several fun and informative zoom presentations from 8:30 – 10:30 a.m. on Saturday, September 26.

No t-shirts will be provided in registration fee but everyone who is registered will receive a special face mask or gaiter.

Karl and 10-year-old Samantha (Sammi) Nelsen, and four-year-old Ava Nawrocki are affected by a rare genetic condition called ectodermal dysplasia. This condition affects sweat production, making it difficult to cool the body. Sammi and Ava also have dry, itchy skin, sparse thin hair, thick nails and are missing some adult teeth.  

(Please note: The form to register or donate does not work on Internet Explorer. Please use a different browser. Thanks!)

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