Save the Date!
Please take time out of your busy schedules to join the Nelsen Family for this event on Sunday, September 15, 2019 at Shady Oak Beach in Hopkins, MN. Register and walk in solidarity anywhere in the USA on that day or consider a donation to the National Foundation for Ectodermal Dysplasias (NFED) using the form below.
Both Karl and nine-year-old, Samantha (Sammi), are affected by a rare genetic condition called ectodermal dysplasia. This condition affects sweat production, making it difficult to cool the body. Sammi aslo has dry, itchy skin, sparse hair, thick nails and is missing some adult teeth.
More information to follow soon!