Shaping Our Future

Your research gift represents our future. It’s how we are minimizing
the dramatic effects of ectodermal dysplasias, searching for cures, and helping our families.

2021 – The Year of Research

Research. It’s why the NFED works so hard to raise money to support studies about areas like protein replacement, sweat gland development, healthy skin growth, corneal regeneration, additional tooth buds… and more to come.

International Research Conference – This October, we’re bringing researchers and clinicians together to share ideas and strategies – and to trigger new breakthroughs. Post-conference, we’ll offer seed money for new research studies.

Let‘s Change Our Future!

Individuals with ectodermal dysplasia often face a lifetime of skin, dental, cooling, and self-image challenges. When you Boost the Cure, you help expand early diagnostics, treatments, pathways toward cures… and hope!

Check out our Research Brochure.


Use the form below to make a one-time gift or begin a new monthly Smile Makers! donation.

If you are a current monthly recurring donor and are interested in changing your donation, please contact us and we will work directly with you to confirm.

Donations to the NFED are eligible for tax deductions to the limit allowable by the law. We are a 501c3 nonprofit organization. Our tax identification number is 37-1112496.

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