Celebrating 40 Years of the NFED

In 1981, those affected by ectodermal dysplasias had nowhere to turn. But then, thirteen families decided things had to change… the NFED was born.

When someone says it’s impossible… prove them wrong!”
– Mary Kaye Richter, NFED Founder

Forty years later, and the NFED serves over 9,200 affected individuals and families in 118 countries!

At the NFED, we are celebrating 40 years of supporting families who don’t know where else to turn. The theme for our 40th anniversary is Deep Roots, Strong Branches.

Our deep and rich history has allowed us to grow strong branches of impact. The NFED is now recognized as the worldwide expert and leading provider of research, education, advocacy, and support for those affected by ectodermal dysplasias. And we couldn’t do it without you!

Thank you for making our first 40 years amazing!

Consider Sponsoring our Anniversary Year

40th Anniversary sponsorships will allow the NFED to continue to provide research, education and support for ALL affected by ectodermal dysplasias. Gifts of $500 or more will be considered a 40th Anniversary Sponsor and receive the appropriate benefits.

Yes, I Want to Sponsor!


Use the form below to make a one-time gift or begin a new monthly Smile Makers! donation.

If you are a current monthly recurring donor and are interested in changing your donation, please contact us and we will work directly with you to confirm.

Donations to the NFED are eligible for tax deductions to the limit allowable by the law. We are a 501c3 nonprofit organization. Our tax identification number is 37-1112496.

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