We Are the Voices of Change

Together, we are the many, many faces, races, cultures and ages of ectodermal dysplasia – and when we bring together all our voices, we can make something remarkable happen!

Your Voice Changes Lives

Your loving support, your voice is what powers our education and treatment assistance programs, inspires life-changing research, powers international research conferences, fuels the ELSA advocacy campaign, and allows us to bring families and individuals together at our family conferences.

Will You Be the Change?

Change doesn’t just happen by accident, it happens because of you! Be the change… for yourself, for someone else, for all those affected by ectodermal dysplasias. Your support, your voice, your gift empowers us to become the change that a child somewhere is dreaming about right now.

Whether a special one-time donation or a recurring gift, your support brings joy, hope and change to so many.

It’s time to make some noise. It’s time for a change!


Use the form below to make a one-time gift or begin a new monthly Smile Makers! donation.

If you are a current monthly recurring donor and are interested in changing your donation, please contact us and we will work directly with you to confirm.

Donations to the NFED are eligible for tax deductions to the limit allowable by the law. We are a 501c3 nonprofit organization. Our tax identification number is 37-1112496.

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