A Grandma’s Greatest Passion

At the NFED, we hold a special place in our hearts for our volunteers. Donna Garrett-Miller is a proud volunteer who has left her mark on the ectodermal dysplasias community after just one year since her grandson was diagnosed with AEC syndrome.

A Champion for the Ectodermal Dysplasias Community

Dr Lisa Knobloch is a dentist who passionately cares about individuals affected by ectodermal dysplasias. For more than a decade, families have flocked to the NFED Dental Treatment Center she founded at The Ohio State University. Read about the extensive services and financial assistance they offer and what families have to say.

This is a Family Affair

Nikko is a lucky little boy whose family has rallied around him with love and support. Grandpa David and uncle Paul headed off to an NFED Family Conference in search of answers. They found those…and so much more. Find out what they learned and how they are giving back.

Help Us Crush Our 2019 Goals

You can help us crush our 2019 goals. Do you want to be a monster or a mummy? Want to bid on some great prizes? Or, could you make a few clicks to advocate for our important bill? We are looking for volunteers to help with all of these to improve lives for the ectodermal dysplasias community.

Why Volunteering Can Change Your Life

Volunteering for the NFED gives you the opportunity to meet and help others with ectodermal dysplasias. But, you are the one who may benefit most. Learn more and sign up today.

Seventy-Five Strong

We thank our hard-working volunteers for the hours they so generously dedicated to the 2019 NFED Family Conference. Without them, this event would not be possible.