Mary Fete and Dr. Tim Fete share tips for helping teens with ectodermal dysplasias cope with life during the COVID-19 pandemic.
There are many emotions that we are all experiencing throughout these days of uncertainty. It’s highly likely that each of us will travel through the stages of grief. Some days, the stress can feel so heavy. It’s important to recognize and accept that this is OKAY! While our situations and personal experiences may be different, we’re all learning how to accept and cope with the changes in our lives as a result of COVID-19
If your child is affected by ectodermal dysplasia, your to-do list to school ready for likely has more on it than buying supplies! We pulled together some resources to help you advocate for your child at school.
Does hypohidrosis make you want to stay inside? Learn what to do to keep loved ones who can’t sweat cool this summer while they are riding in the back seat of a car.
An Oregon mom talks about what she saw at her first NFED Family Conference and why that keeps her and her family coming back.
The following presentation is a very simple way to introduce the ectodermal dysplasia to your child’s classmates and teachers. We published this article years ago but it’s still a great idea for parents to use in their child’s classroom. Levi is now an adult who has his own family! By Kim Howard My son’s name…
Genetic carriers or people with ectodermal dysplasias will have to tell their partner at some point when things get serious. Here are some tips to help you.
The world can be a pretty lonely place if you think that yours is the only family navigating the twists and turns of life with ectodermal dysplasia. But there’s no need to live on an island! There are plenty of ways to start making connections and building a network of love and support, including attending ectodermal dysplasia conferences.