Jessica Reece has always had super thin, fragile and unmanageable hair due to EEC syndrome. Find out how trying a wig has changed her life. Plus, learn Jessica’s best tips for purchasing, choosing, caring for and styling a wig.
Getting your health insurance to pay for your dental care can be tough. We can help! Use our expanded insurance resources to map out your journey to success!
Jamie Sommerville shares her best tips for how to get your insurance company to cover the dental treatment you need. Plus, learn what NFED resources made all the difference.
In her book Raising Charitable Children, Carol Weisman, internationally recognized philanthropy expert (and full disclosure – a friend of mine), discusses how to instill a sense of giving in children – and then watch them develop into generous, responsible, thoughtful, kind, loving and happy adults. Carol beautifully sums up her approach in one simple line:…
Many of our communities have opened up to varying degrees during the past few weeks – and right at the time that summer temperatures are climbing. New safety measures for living in this COVID-19 world may bring extra challenges for people affected by ectodermal dysplasias. We have tips and resources to help you.
Mary Fete and Dr. Tim Fete share tips for helping teens with ectodermal dysplasias cope with life during the COVID-19 pandemic.
There are many emotions that we are all experiencing throughout these days of uncertainty. It’s highly likely that each of us will travel through the stages of grief. Some days, the stress can feel so heavy. It’s important to recognize and accept that this is OKAY! While our situations and personal experiences may be different, we’re all learning how to accept and cope with the changes in our lives as a result of COVID-19
If your child is affected by ectodermal dysplasia, your to-do list to school ready for likely has more on it than buying supplies! We pulled together some resources to help you advocate for your child at school.