Olivia was surprised that strangers would want to hear her story. She’s promoting acceptance through Operation in Full Bloom. Read the finale to this pageant winner’s story.
The Amazing Power of Hope
Olivia Daniels has faced many challenges in her 22 years. She learned to channel her feelings and experiences into acts of service and kindness. She’s an amazing creative force for good! Find out how this pageant champion is using her platform to raise awareness of ectodermal dysplasias and serve others.
Seeing Myself as Beautiful
Nicole Fitzgerald spent many years not feeling like a woman because of how ectodermal dysplasia affected her hair, teeth, skin and breasts. She found her path to feeling beautiful and wants to share that with other women.
My Son With Incontinentia Pigmenti
Boys affected by incontinentia pigmenti typically do not survive pregnancy. The condition is an X-linked dominant “lethal” condition. Meet Jamistyn, a 6-year-old boy with IP who not only survived but is thriving! Read more about his extremely rare story!
I Wanna Ask Santa for Teeth
Seeing a friend’s teeth, 3-year-old Kannon decides he’ll ask Santa for the teeth he hasn’t developed. Dr. Karen McAndrew steps in to make his first denture and his wish come true.
Talented Gymnast Overcomes Goltz Challenges
Jordan Buerman is an anomaly in the sport of gymnastics. Not only does she have Goltz syndrome, she only has one foot and limited vision! Find out how this gymnast not only competes but at a state level!
Kelly and Eric Koch became first-time parents when they welcomed a beautiful healthy girl named Clara. When sweet Clara’s baby teeth erupted and were shaped differently, the Kochs started on a long and humbling journey to understand why. The answer is a diagnosis that is one of the rare of the rare. Kelly bares her heart as she shares her journey as a new mom.
Blessed On A Sunny Day
Lily’s symptoms turned Alexus Abney and her fiancé’s lives upside down. However, this sweet baby has been a blessing to their lives in many different ways.