Charlotte Smith knows what it’s like to be a young woman with thin hair. Learn her best hair tips and how having hair has changed her.
Meet, Quiel Barrameda, a 35-year-old man from the Philippines who was born with hypohidrotic ectodermal dysplasia (HED). Learn how he stays cool and overcame major challenges with the love and support of his family.
Auggie and Dakota Olive have hypohidrotic ectodermal dysplasia, but they don’t sweat it. Hear how they overcame multiple obstacles and swam their way to the national championships.
This story follows-up on Kannon Koser and how he’s adjusting to his new denture! Find out how it’s impacted his speech and eating and what his parents did to get him to wear it.
Elizabeth Hoverman faced treatment failures and a pandemic delay to get her beautiful smile. The artist shares her exhausting six-year journey and why she can’t stop smiling.
They dissed him. Called him names. Made fun of his appearance. Their voices rang in his ears every day. Voices filled with ridicule and hate. And for what reason? Simply because he was affected by a rare disorder. One day, Cyprian Katongo chose to listen to different voices. His life of suffering took a new direction….one he defines as H.E.D.
Erica Green is a young woman who spent her life without a name or explanation as to why her teeth were missing and different. Because she presented “normally,” no doctor or dentist ever had answers or a name. Then, she broke her denture and sent her on a journey to self-diagnosis.
Kaitlyn Squibb knew all the ways that x-linked hypohidrotic ectodermal dysplasia affected her body. But, she’s finding strength as she learns how it impacts her emotions, too.