In this year filled with so much uncertainty, HOPE provides us with the energy and determination to keep moving forward. Here’s what gives us hope!
The 2020 #GivingNFEDTuesday Challenge
Learn about a one-day opportunity to double your gift to the NFED and celebrate the amazing power of hope.
2021 Family Conference – What You Need to Know
Mary Fete from the National Foundation for Ectodermal Dysplasias announces a change in plans for the 2021 Family Conference.
Free Wig Giveaway
The late JoAnna Daniel Nix wanted other women affected by ectodermal dysplasias to benefit from her wigs. It’s our honor to give them away in her loving memory. See how you can apply.
Three Ways to Support the Halloween Bash
Don’t miss the chance to be a part of the NFED’s largest fundraiser. And it’s all online!
Welcome Incontinentia Pigmenti Families!
A nonprofit dedicated to one type of ectodermal dysplasia has closed its doors. We are honored to have worked with its founder to transfer their information and welcome their families. Explore our new, expanded section on incontinentia pigmenti.
2019 Annual Impact Report
Since 1981, our mission has focused on families affected by ectodermal dysplasias. We are proud of the extraordinary accomplishments we have achieved in our nearly four decades. 2019 was no exception. Read to see the impact we made for our NFED family.
Dr. Karen McAndrew Helps Children Get Teeth
Prosthodontist Dr. Karen McAndrew is helping patients with ectodermal dysplasia get the treatment they need over their lifetime.