A nonprofit dedicated to one type of ectodermal dysplasia has closed its doors. We are honored to have worked with its founder to transfer their information and welcome their families. Explore our new, expanded section on incontinentia pigmenti.
2019 Annual Impact Report
Since 1981, our mission has focused on families affected by ectodermal dysplasias. We are proud of the extraordinary accomplishments we have achieved in our nearly four decades. 2019 was no exception. Read to see the impact we made for our NFED family.
Dr. Karen McAndrew Helps Children Get Teeth
Prosthodontist Dr. Karen McAndrew is helping patients with ectodermal dysplasia get the treatment they need over their lifetime.
Thank You, for Keeping NFED Forever Strong!
From all of us to all of you…thank you! Your kindness, your generosity, and your loving support make our kids and families – and the National Foundation for Ectodermal Dysplasias – Forever Strong! Watch our thank you video message.
What Makes A Child With Ectodermal Dysplasia Forever Strong?
Growing up isn’t easy, especially if you are a child affected by ectodermal dysplasia.
You are Strong!
As the challenging times continue, we know a few things are certain. You are strong. Together, we are stronger. Find about the exciting projects we are launching this summer to bring us together.
The Amazing Power of Helping Others!
Helping others can end up helping ourselves and our health. Find out ways you can help pay it forward!
Celebrating Our Superman’s Legacy
Our hearts broke when Dr. Frank Farrington recently passed after a long illness. We recall with much love and gratitude his amazing legacy after 40 years of service to the NFED and our families.