You are Strong!

As the challenging times continue, we know a few things are certain. You are strong. Together, we are stronger. Find about the exciting projects we are launching this summer to bring us together.

Celebrating Our Superman’s Legacy

Our hearts broke when Dr. Frank Farrington recently passed after a long illness. We recall with much love and gratitude his amazing legacy after 40 years of service to the NFED and our families.

Tim Mickelson Joins NFED Team

We are excited to introduce you to the newest member of our team, Tim Mickleson. He will serve as the Director of Development. “Tim brings 30+ years of experience in the corporate and nonprofit world,” said Mary Fete, executive director of the National Foundation for Ectodermal Dysplasias. “We look forward to him leading our fundraising…

Donor Spotlight: Linda Marcus

Linda Marcus decided to become an NFED Smile Maker in honor of her grandson who is affected. Learn what she’s doing to support him and the Foundation.

Remembering Joanna Daniel Nix

NFED Founder Mary K. Richter recalls the beautiful person, Joanna (Daniel) Nix. Joanna was affected by EEC syndrome and was one of the NFED”s founding families.

Family Conference Canceled Due to Coronavirus

To protect the health and safety of families affected by ectodermal dysplasias, the NFED has canceled our 2020 Family Conference in Washington D.C.

We Celebrate Ectodermal Dysplasias globally!

The National Foundation for Ectodermal Dysplasias (NFED) has been celebrating Ectodermal Dysplasias Awareness Month throughout February and Rising Up for Rare! But today, 2-20-2020, we join with the ectodermal dysplasias support groups in other countries to celebrate the first International Ectodermal Dysplasias Awareness Day. We are very proud of our international partners and collaborations! Let…