Mary Fete from the National Foundation for Ectodermal Dysplasias announces a change in plans for the 2021 Family Conference.
The late JoAnna Daniel Nix wanted other women affected by ectodermal dysplasias to benefit from her wigs. It’s our honor to give them away in her loving memory. See how you can apply.
Don’t miss the chance to be a part of the NFED’s largest fundraiser. And it’s all online!
A nonprofit dedicated to one type of ectodermal dysplasia has closed its doors. We are honored to have worked with its founder to transfer their information and welcome their families. Explore our new, expanded section on incontinentia pigmenti.
Since 1981, our mission has focused on families affected by ectodermal dysplasias. We are proud of the extraordinary accomplishments we have achieved in our nearly four decades. 2019 was no exception. Read to see the impact we made for our NFED family.
Prosthodontist Dr. Karen McAndrew is helping patients with ectodermal dysplasia get the treatment they need over their lifetime.
From all of us to all of you…thank you! Your kindness, your generosity, and your loving support make our kids and families – and the National Foundation for Ectodermal Dysplasias – Forever Strong! Watch our thank you video message.
Growing up isn’t easy, especially if you are a child affected by ectodermal dysplasia.