A Year for the Books

2020 was filled with unprecedented global, health, economic and social challenges. That makes it doubly important that we all pause and look back on some of the great things that we’ve accomplished…with you at our side.

Dental Treatment Centers Added in New York and Georgia

We are excited to share that we have added three new Dental Treatment Centers! Families affected by ectodermal dysplasias now have 22 different centers across the United States to consider for their oral health care. One of these centers is offering free dentures for children under 8.

Twin Voices of the Future for Ectodermal Dysplasias

Life has been full of surprises for the Sanmiguel Bejarano family. They are teaching their daughters how to rally in the face of the unexpected. Alicia and Luna share what they want others to understand about their rare condition. They are becoming the Voices of the Future for ectodermal dysplasias.

We are Determined to Be the VOICES of Change

Together, we are the VOICES of ectodermal dysplasia. We are the many, many faces, races, cultures and ages – and when we bring together all our voices, we can make something remarkable happen! Find out how you can help.

Rise Up and Celebrate Caregivers

Today, we rise up and celebrate all of the caregivers around the world as part of Ectodermal Dysplasias Awareness Month! We pay tribute to everyone who has made someone’s ectodermal dysplasia journey a little easier.

It’s Time to Rise Up for Rare!

You are invited to join us to celebrate our community! It’s Ectodermal Dysplasias Awareness Month and we have lots of fun ways for you to get involved and spread the word.

Celebrate Kelley’s 20th NFED Anniversary!

Helping families with ectodermal dysplasias is her passion! Learn more about this staffer, the lives she’s touched and the many roles she’s played at the Foundation.