National Family Conference Registration Deadline is Today, June 30th! There is still time for you to register. Don’t miss out on the opportunity to meet others affected by ectodermal dysplasia, hear from physicians who know about ectodermal dysplasias, and have a super, fun-filled conference experience. To register, simply fill out the registration form and fax…
Bios of our 2011 National Family Conference Speakers
You don’t want to miss their valuable information! Hope you will attend as many sessions as possible! Dr. Alanna F. Bree, M.D. Dr. Bree is a dermatologist in private practice at Dermatology Specialists of Houston. Formerly she was an Assistant Professor of Dermatology and Pediatrics at Baylor College of Medicine. She graduated from Southern Illinois…
NFED 2010 Annual Report
Our 2010 Annual Report is now on-line for everyone to view! We felt that we should include this media source to spread the word! https://nfed.org/wp-content/uploads/2019/11/NFED-2010-Annual-Report.pdf Happy Reading!
Miles & Smiles @ the NFED Family Conference
Have you ever wondered how far you walk over the course of three days at the Family Conference? Well, not only have we come up with a way for you to track it, we figured out a way for you to raise money while you do it! The NFED is hosting Miles & Smiles at…
More on Splash City Waterpark ! Fun, Fun, Fun!!
Splash City Family Waterpark is Fun for the Whole Family! Splash City is located at 10 Gateway Drive in Collinsville, Illinois. Parking is always free! Just a few housekeeping items worthwhile for you to know ahead of time! Appropriate Attire is Required: Guests MUST wear a lined swimsuit to participate in all water park activities. Revealing…
Splash City Waterpark on Thursday 21 July
We will be going to Splash City Waterpark on Thursday Evening 21 July 2011! Have you marked your registration if you need transportation to the Waterpark? We will provide shuttle service, but we need to know how many will be using this service from the Hilton Garden Inn Hotel to Splash City Waterpark! Dinner is…
Why attend a Family Conference?
Perhaps you have wondered whether or not you should attend a family conference. Perhaps you have even wondered if there is any lasting value to setting aside three (or four) days in your already overbooked schedule in order to spend time with people you may never have met… And in response, I say a resounding,…
Update on the Family Conference Hotel 06/17/2011
As per Thursday, June 16th, 2011 The Hilton Garden Inn, our National Family Conference Hotel, no longer has Double Rooms available. There are plenty of King Size Rooms left. If you absolutely need a Double Room, we have a couple of different hotel options for you to check out below. Please, keep in mind that…