Together, we are the VOICES of ectodermal dysplasia. We are the many, many faces, races, cultures and ages – and when we bring together all our voices, we can make something remarkable happen! Find out how you can help.
Sporting blue, families take to social media to celebrate their loved ones affected by ectodermal dysplasia.
Today, we rise up and celebrate all of the caregivers around the world as part of Ectodermal Dysplasias Awareness Month! We pay tribute to everyone who has made someone’s ectodermal dysplasia journey a little easier.
You are invited to join us to celebrate our community! It’s Ectodermal Dysplasias Awareness Month and we have lots of fun ways for you to get involved and spread the word.
Helping families with ectodermal dysplasias is her passion! Learn more about this staffer, the lives she’s touched and the many roles she’s played at the Foundation.
2020 was a year full of challenges, but the NFED excelled in many ways. We brought hope into reality.
In this year filled with so much uncertainty, HOPE provides us with the energy and determination to keep moving forward. Here’s what gives us hope!
Learn about a one-day opportunity to double your gift to the NFED and celebrate the amazing power of hope.