Meet the newest member of the National Foundation for Ectodermal Dysplasias staff. Becky Abbott will help us serve families affected be ectodermal dysplasias by managing the treatment and research programs. Learn why our mission is personal for this rare disease advocate.
We Exceeded Our Goal!
Thanks to all of you who set up Facebook Fundraisers and who donated whether it was through Facebook, our website, or through the mail, we received over $39,000 in donations on #GivingNFEDTuesday. To say we were overwhelmed by the generosity of our NFED community would be an understatement. Thank you from all of us at the NFED for your…
Why I Advocate
Kerri Fasulo is teaching her daughter how to use her voice to create positive change. Find out what they doing to help you and your family.
We want to thank you.
In recent years, there has been a growing trend to create a “Gratitude Jar” as a visual reminder of the wonderful things in our lives. Every day (or as often as possible), you put in a note about something that happened that day that gives you gratitude and thanks. At the end of the year,…
Basile and Stratz Join Board of Directors
Corporate executives Krista Basile and Richard Stratz join the National Foundation for Ectodermal Dysplasias Board of Directors.
Bridges to Inspiration
I spent a good part of Sunday walking around Portland, Ore. and reflecting on the 2018 National Foundation for Ectodermal Dysplasias (NFED) Family Conference. People passing me likely thought I was in another world. I was smiling and laughing as I strolled along the river walk. One person stopped me and said, “Wow! You must…
Where will we be?
We are so EXCITED to announce where our next three Family Conference will be held! Last year, we were on the East Coast. This year, we went to the West Coast. Our next stop is…
This is Us
We are your NFED team! We’re a mighty crew of six women. We couldn’t be more different. And that’s a good thing! But we are the same in one way. The most important way. The six of us are passionate about families affected by ectodermal dysplasia and doing what we can to help you. Since we typically get to learn about you, we thought it was our time to share. This is us.