Are you a part of the largest organization for families affected by ectodermal dysplasias? Some of our members weighed in on what they have found to be the biggest benefit of joining the National Foundation for Ectodermal Dysplasias. Find out why the NFED is where you belong!
We Reached New Heights Together at Family Conference
Our NFED family gathered in Colorado, for a weekend filled with educational workshops, research updates, and dental evaluations along with hugs, laughter and some tears. Mary Fete thinks it just may have been the best yet! Read about the impact, see the photos and learn where next year’s Family Conference will be!
An Easy Way to Double Your Impact at the NFED
Would you like to help search for free money for the NFED? It’s as easy as seeing if your company has a matching gifts program. Learn how these programs work and use our easy tool to see if your company will match your gifts.
Coming to Family Conference? Explore Colorado!
One of the best things you can do this summer is turn your Family Conference trip into a family vacation! Colorado is a beautiful place to explore and has something for everyone. Tack on a few days before or after the Conference for the perfect summer getaway. Our Conference will take place in Broomfield, Colorado,…
All Things Family Conference
On February 15, I had the pleasure of joining some new and returning families on a webinar to answer all of their questions about the NFED Family Conference, which will take place July 14 – 16. If you weren’t able to join us at the webinar, I want to share some of the great questions…
Get Ready for Ectodermal Dysplasias Awareness Month
February is Ectodermal Dysplasias Awareness Month. Learn more about what the NFED is doing to raise awareness and how you can join the fun!
The Smile That Means The Most to Me
Jayden Clark’s skin as a baby was so fragile at one point it caused a life threatening infection. Even small brushes of his skin could cause it to breakdown. Now 19, Jayden is a thrill seeker! Learn more about his extensive medical journey, his passions and the special message he has for others with ectodermal dysplasias who find it hard to smile.
Remembering Mary K. Richter With Great Love
Our hearts are heavy. The matriarch of our National Foundation for Ectodermal Dysplasias (NFED) family, Mary K. Richter recently died. We know this has come as a shock for our community. Amidst our profound sadness, join us as we remember this incredible woman.