Would you like to help search for free money for the NFED? It’s as easy as seeing if your company has a matching gifts program. Learn how these programs work and use our easy tool to see if your company will match your gifts.
Coming to Family Conference? Explore Colorado!
One of the best things you can do this summer is turn your Family Conference trip into a family vacation! Colorado is a beautiful place to explore and has something for everyone. Tack on a few days before or after the Conference for the perfect summer getaway. Our Conference will take place in Broomfield, Colorado,…
All Things Family Conference
On February 15, I had the pleasure of joining some new and returning families on a webinar to answer all of their questions about the NFED Family Conference, which will take place July 14 – 16. If you weren’t able to join us at the webinar, I want to share some of the great questions…
Get Ready for Ectodermal Dysplasias Awareness Month
February is Ectodermal Dysplasias Awareness Month. Learn more about what the NFED is doing to raise awareness and how you can join the fun!
The Smile That Means The Most to Me
Jayden Clark’s skin as a baby was so fragile at one point it caused a life threatening infection. Even small brushes of his skin could cause it to breakdown. Now 19, Jayden is a thrill seeker! Learn more about his extensive medical journey, his passions and the special message he has for others with ectodermal dysplasias who find it hard to smile.
Remembering Mary K. Richter With Great Love
Our hearts are heavy. The matriarch of our National Foundation for Ectodermal Dysplasias (NFED) family, Mary K. Richter recently died. We know this has come as a shock for our community. Amidst our profound sadness, join us as we remember this incredible woman.
Incredibly Grateful for So Many Things This Year
This week, we celebrate Thanksgiving. On my daily walks, I’ve been thinking about this year and how much we truly have to be grateful for as an ectodermal dysplasias community. Having gratitude can really shift our perspective on life and help us feel hopeful. I know it does for me. Join me as I look back on 2022 and just a few of the wonderful things that took place at the National Foundation for Ectodermal Dysplasias (NFED).
40 Years of Achievement
2021 Annual Impact Report In 1981, a new organization was formed with a simple but incredibly important purpose—to help all those impacted by ectodermal dysplasias. Now, forty years later, the National Foundation for Ectodermal Dysplasias (NFED) is recognized as the global leader on all things ectodermal dysplasia. In 2021, we provided support to nearly 10,000…