Eight Easy Steps to Match Your NFED Donation

Did you know that the National Foundation for Ectodermal Dysplasias (NFED) currently has a small but mighty group of 17 donors that have their employers match their donation? Since 2016, these companies have donated over $3,300 matching gift dollars paid and almost $4,000 matching gift dollars pledged.  Almost $10,000 total has been given to the…

Must See In Washington DC…

Washington D.C. is not just our country’s capitol.  It is filled with delicious places to eat, cultural events and filled with American history. You can find it all in DC.  Here is just a slice of places you can visit while you are there during Family Conference.  You can also view other places to see…

2016 Annual Impact Report

A Year of PROMISE. Perseverance. GROWTH. Creativity. Celebration. We are very excited to share with you the 2016 Annual IMPACT Report for the National Foundation for Ectodermal Dysplasias (NFED). In it, you can read how you, our families and supporters, have impacted on all areas of our mission. We thank everyone who supported us n…

Family Conference Sponsors Needed

Each year, we hold our Family Conference that provides life-changing experiences for our families at the National Foundation for Ectodermal Dysplasias (NFED).  Annually, 300 to 400 people from all over the world and the U.S. get to experience that they are no longer alone. They get to connect with other families and talk to doctors…

Four New Board Members Added

We welcome four new members to the National Foundation for Ectodermal Dysplasias (NFED) Board of Directors: Karl Nelsen, Keith Throm, Marianne Vermeer and Dr. Tim Wright. Volunteering for a Board takes a huge time commitment. Their input is valuable as they steer the NFED and keep us moving forward. Karl Nelsen has been a member of…

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