Must See In Washington DC…

Washington D.C. is not just our country’s capitol.  It is filled with delicious places to eat, cultural events and filled with American history. You can find it all in DC.  Here is just a slice of places you can visit while you are there during Family Conference.  You can also view other places to see…

2016 Annual Impact Report

A Year of PROMISE. Perseverance. GROWTH. Creativity. Celebration. We are very excited to share with you the 2016 Annual IMPACT Report for the National Foundation for Ectodermal Dysplasias (NFED). In it, you can read how you, our families and supporters, have impacted on all areas of our mission. We thank everyone who supported us n…

Family Conference Sponsors Needed

Each year, we hold our Family Conference that provides life-changing experiences for our families at the National Foundation for Ectodermal Dysplasias (NFED).  Annually, 300 to 400 people from all over the world and the U.S. get to experience that they are no longer alone. They get to connect with other families and talk to doctors…

Four New Board Members Added

We welcome four new members to the National Foundation for Ectodermal Dysplasias (NFED) Board of Directors: Karl Nelsen, Keith Throm, Marianne Vermeer and Dr. Tim Wright. Volunteering for a Board takes a huge time commitment. Their input is valuable as they steer the NFED and keep us moving forward. Karl Nelsen has been a member of…

Ectodermal Dysplasias Awareness Month 2017

An estimated 3.5 of 10,000 people are affected by ectodermal dysplasias. Very few people have heard about these conditions or know about the challenges people with it face. You can help us change that number. Join the National Foundation for Ectodermal Dysplasias (NFED) in our worldwide effort this February to raise awareness and funds for these…

Kick off the New Year by Becoming an NFED Smile Maker!

Join our quick, easy, and affordable monthly giving program, the National Foundation for Ectodermal Dysplasias (NFED) Smile Makers, today! Thousands of affected families and individuals have turned to the NFED as a pillar of hope.  Please grow and sustain our work so we can continue to support our friends and family affected by ectodermal dysplasias….

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