Let’s Celebrate 40 Years of NFED Success!

The National Foundation for Ectodermal Dysplasias (NFED) turned 40 years old on December 24, 2021. Normally, we would have recognized this milestone throughout last year. But, the pandemic caused us to shift our plans. Find out what we all have planned for this celebration year!

Have a Magical Holiday, NFED Family!

Please watch and enjoy this holiday greeting from our NFED staff. If only it could include all of the thousands of faces we had the honor of serving this year. May you and your family experience the incredible joys of the holiday season!

Growing Up with the NFED: Meet Virginia

Virginia Higgins was just five years old when her mom, Fredia Shimchick, heard about a mom in the area who was looking for other families affected ectodermal dysplasias. Their family would be one of the first 12 families who called NFED their ectodermal dysplasia home. Find out about her love for the NFED family and why she gives back.

Team Nikko Finds Home in the NFED

Dave Reidenouer is the kind of dad and grandpa who jumps in to help when his family needs him. For him, family means, “coming together to overcome obstacles and challenges, working together to do fun and good things.” And that’s exactly what his family has done since their first grandchild, Nikko Vecchini, was born affected by hypohidrotic ectodermal dysplasia. Read how the NFED became their lifeline.

NFED Collaborates with Lab to Make Dentures for Kids

Has your dentist had a hard time finding a dental lab which could make dentures small enough for your child with ectodermal dysplasia? Are you a care provider searching for a dental lab to make small dentures for your pediatric patient? Learn how we can help!

Lea Celebrates 10 Years at the NFED

We recognize Lea Richardson’s 10 years of service to our NFED family. Learn about her dedication and commitment as what her role is at the Foundation.