Join the 2026 Halloween Bash, hosted by the Geismar family! Mark your calendars for October 20–31, 2026 and join us for our spooktacular 26th Anniversary Halloween Bash! This celebration features an online auction, an in person party in NYC on October 24th, and plenty of frightfully fun ways to make a difference for families affected…
The Best Kind of Medicine: Inside NFED’s 45th Anniversary Family Conference
What happens when hundreds of people who truly understand life with ectodermal dysplasias come together? Hope grows. Friendships begin. Lives change. From happy tears and inspiring stories to exciting research and unforgettable moments, see why the 2026 NFED Family Conference reminded everyone that no one walks this journey alone.
Look Back at Our 2025 Impact Report
Together. That word has defined the National Foundation for Ectodermal Dysplasias (NFED) since its founding. As we reflect on 2025, it’s the one that best captures what we accomplished this past year. Our 2025 Impact Report is officially here! Look back at a year of more support, research, advocacy, and community for people with ectodermal…
45 Years of NFED: How One Mom Changed Everything
In 1981, one mom had an idea that changed everything. Forty-five years later, the NFED has grown into a global community of 11,100 families. Read how we got here and look back and marvel at 45 accomplishments in 45 years!
Small NFED Fundraisers, Real Impact
Our families have found creative ways to fundraise for the NFED doing things that they love. Find out how they made friends, built community, and raised awareness along the way. Get inspired to have your own small fundraiser and make an impact!
Join Our Team: Director of Research
Be the Bridge Between Science and Hope The National Foundation for Ectodermal Dysplasias (NFED) is seeking a passionate, collaborative leader to serve as our Director of Research. This is your opportunity to make a lasting impact in the rare disease community by connecting groundbreaking research with the families who need it most. About This Role…
Putting People First: NFED’s New Executive Director Shares His Vision
We recently sat down with Greg Klimovitz, our new executive director as of October 2025, to learn what drew him to the Foundation, his vision, and how he hopes to build on the NFED’s success. In this Q&A, Greg talks honestly about why community is at the heart of everything we do. What are you…
From My Heart to Yours: Reflections as I Step Into Retirement
As Mary Fete prepares to retire, she looks back on an amazing journey with the NFED community. From nervous first days to unforgettable Family Conferences, she says she’s been inspired, challenged, and blessed. Join her in celebrating the people, moments, and progress that made her experience unforgettable.