2020 was a year full of challenges, but the NFED excelled in many ways. We brought hope into reality.
In this year filled with so much uncertainty, HOPE provides us with the energy and determination to keep moving forward. Here’s what gives us hope!
Learn about a one-day opportunity to double your gift to the NFED and celebrate the amazing power of hope.
Mary Fete from the National Foundation for Ectodermal Dysplasias announces a change in plans for the 2021 Family Conference.
The late JoAnna Daniel Nix wanted other women affected by ectodermal dysplasias to benefit from her wigs. It’s our honor to give them away in her loving memory. See how you can apply.
Don’t miss the chance to be a part of the NFED’s largest fundraiser. And it’s all online!
A nonprofit dedicated to one type of ectodermal dysplasia has closed its doors. We are honored to have worked with its founder to transfer their information and welcome their families. Explore our new, expanded section on incontinentia pigmenti.
Since 1981, our mission has focused on families affected by ectodermal dysplasias. We are proud of the extraordinary accomplishments we have achieved in our nearly four decades. 2019 was no exception. Read to see the impact we made for our NFED family.