Dr. Albert Guckes: A Dentist With a Big Heart

Back in the 1980s, a prosthodontist named Dr. Albert D. Guckes became interested in the ectodermal dysplasias. He speculated that dental implants might be a viable treatment for affected adults who were missing teeth. His landmark study would impact generations to come with what they learned. We not only thank Dr. Guckes for this study but for what he did for the next three decades to help our families.

Collaborating With Leaders Around the World

In early October, NFED Executive Director Mary Fete met with leaders from eight other ectodermal dysplasia support groups/organizations in Germany. Find out what they talked about and what they have planned for 2-20-20!

What Happened at the 2019 Family Conference

Chicago proved to be a sweet home for our 38th Annual Family Conference! We welcomed the third largest gathering of families affected by ectodermal dysplasias in history on July 11-13 with 435 people from seven countries attending. It was an extraordinary event filled with new friendships, aha moments, laughter, hugs, and even tears.

Thank You, Jodi, Editing Queen of the NFED

Jodi Edgar Reinhardt has dedicated 25+ years to the ectodermal dysplasias community as a staffer at the National Foundation for Ectodermal Dysplasias.

Ongoing Research Into Skin Lesions In Patients Affected By AEC and EEC

By Maranke Koster, Ph.D. The long-term goal of our research is to design novel therapies for the treatment of skin and cornea lesions that occur in ankyloblepharon-ectodermal defects-cleft lip and/or palate (AEC) and ectrodactyly-ectodermal-dysplasia-clefting (EEC) patients. In the past, many of you have donated skin biopsies to support this research. These skin biopsies were used…