Free Wig Giveaway

The late JoAnna Daniel Nix wanted other women affected by ectodermal dysplasias to benefit from her wigs. It’s our honor to give them away in her loving memory. See how you can apply.

Welcome Incontinentia Pigmenti Families!

A nonprofit dedicated to one type of ectodermal dysplasia has closed its doors. We are honored to have worked with its founder to transfer their information and welcome their families. Explore our new, expanded section on incontinentia pigmenti.

2019 Annual Impact Report

Since 1981, our mission has focused on families affected by ectodermal dysplasias. We are proud of the extraordinary accomplishments we have achieved in our nearly four decades. 2019 was no exception. Read to see the impact we made for our NFED family.

Dr. Karen McAndrew Helps Children Get Teeth

Prosthodontist Dr. Karen McAndrew is helping patients with ectodermal dysplasia get the treatment they need over their lifetime.

Thank You, for Keeping NFED Forever Strong!

From all of us to all of you…thank you! Your kindness, your generosity, and your loving support make our kids and families – and the National Foundation for Ectodermal Dysplasias – Forever Strong! Watch our thank you video message.

You are Strong!

As the challenging times continue, we know a few things are certain. You are strong. Together, we are stronger. Find about the exciting projects we are launching this summer to bring us together.