We recognize Lea Richardson’s 10 years of service to our NFED family. Learn about her dedication and commitment as what her role is at the Foundation.
2020 was filled with unprecedented global, health, economic and social challenges. That makes it doubly important that we all pause and look back on some of the great things that we’ve accomplished…with you at our side.
We are excited to share that we have added three new Dental Treatment Centers! Families affected by ectodermal dysplasias now have 22 different centers across the United States to consider for their oral health care. One of these centers is offering free dentures for children under 8.
Life has been full of surprises for the Sanmiguel Bejarano family. They are teaching their daughters how to rally in the face of the unexpected. Alicia and Luna share what they want others to understand about their rare condition. They are becoming the Voices of the Future for ectodermal dysplasias.
Together, we are the VOICES of ectodermal dysplasia. We are the many, many faces, races, cultures and ages – and when we bring together all our voices, we can make something remarkable happen! Find out how you can help.
Sporting blue, families take to social media to celebrate their loved ones affected by ectodermal dysplasia.
Today, we rise up and celebrate all of the caregivers around the world as part of Ectodermal Dysplasias Awareness Month! We pay tribute to everyone who has made someone’s ectodermal dysplasia journey a little easier.
You are invited to join us to celebrate our community! It’s Ectodermal Dysplasias Awareness Month and we have lots of fun ways for you to get involved and spread the word.