Expanding Our Skin, ENT and Eye Expertise

We simply could not put a price tag on the value the volunteer doctors add to our Scientific Advisory Council (SAC) and our organization. We rely on their talents to lead our research program, present educational workshops at Family Conferences, write educational materials and talk with families one-on-one. They bring incredible expertise to our mission. We are honored to have added three new physicians to the SAC.

Families Educate Medical Professionals

Educating medical professionals about ectodermal dysplasia is an important part of our NFED mission. Families played a critical role by volunteering to share their stories and describe the how the rare condition affects them at a Grand Rounds in Fairfax, Va.

Our Powerful Week of Education

Amazing!  Wonderful!  Informative! Fantastic!  Life-Changing! Educational Empowering! Fun! Fascinating! What word best describes our week in Washington D.C.?  They all do!  For me, it is hard to really describe the impact that week made on our entire community.

Eight Easy Steps to Match Your NFED Donation

Did you know that the National Foundation for Ectodermal Dysplasias (NFED) currently has a small but mighty group of 17 donors that have their employers match their donation? Since 2016, these companies have donated over $3,300 matching gift dollars paid and almost $4,000 matching gift dollars pledged.  Almost $10,000 total has been given to the…

Must See In Washington DC…

Washington D.C. is not just our country’s capitol.  It is filled with delicious places to eat, cultural events and filled with American history. You can find it all in DC.  Here is just a slice of places you can visit while you are there during Family Conference.  You can also view other places to see…

2016 Annual Impact Report

A Year of PROMISE. Perseverance. GROWTH. Creativity. Celebration. We are very excited to share with you the 2016 Annual IMPACT Report for the National Foundation for Ectodermal Dysplasias (NFED). In it, you can read how you, our families and supporters, have impacted on all areas of our mission. We thank everyone who supported us n…

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