Inability to sweat doesn’t keep area man from farming or playing with kids

Charlie Richter was a poster child for the National Foundation for Ectodermal Dysplasia in the 1980s, with his pale skin, bald head, flat nose and kid-size dentures. What the images didn’t show was the most serious symptom of his genetic disorder: The inability to sweat.

Ectodermal Dysplasias Awareness Month 2017

An estimated 3.5 of 10,000 people are affected by ectodermal dysplasias. Very few people have heard about these conditions or know about the challenges people with it face. You can help us change that number. Join the National Foundation for Ectodermal Dysplasias (NFED) in our worldwide effort this February to raise awareness and funds for these…

Kick off the New Year by Becoming an NFED Smile Maker!

Join our quick, easy, and affordable monthly giving program, the National Foundation for Ectodermal Dysplasias (NFED) Smile Makers, today! Thousands of affected families and individuals have turned to the NFED as a pillar of hope.  Please grow and sustain our work so we can continue to support our friends and family affected by ectodermal dysplasias….

2016: Our Year in Review

When I look back over 2016, it brings a smile to my face when I see what we, the National Foundation for Ectodermal Dysplasias (NFED) family, have accomplished. We have truly been blessed with a wonderful year. You helped us accomplish many goals. We are truly grateful that each of you are a part of our family.

Get Baking With Cookies for a Cure

Love cookies? (Who doesn’t?) Want to support the National Foundation for Ectodermal Dysplasias (NFED) and spread awareness for ectodermal dysplasias? We have the perfect fundraising opportunity for you — cookies for a cure.

Ten Reasons to Give Before December 31st

10. GIVING TO THE NFED IS CONVENIENT You can give online, by calling Brittany at (618) 566-6874, or by sending in a check to: NFED, 6 Executive Drive, Suite 2, Fairview Heights, IL 62208-1360. The most convenient and sustainable donation you can make is by becoming a monthly contributor through our Smile Makers program. Simply…

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