Know the Signs of Ectodermal Dysplasias

Do you know the ways ectodermal dysplasia can affect the body? Watch our video to know the signs. People are going undiagnosed which can be frustrating and stressful. Helps us spread the word for Ectodermal Dysplasias Awareness Month.

Breast Development and Ectodermal Dysplasias

Did you know that ectodermal dysplasia can affect breast development in both females and males? Learn how and why it’s related to sweat glands in this new library article. Find out about the various ways breasts can be affected, potential treatment options and how to discuss the issue if your child is affected.

Family Building Options

When a genetic condition is diagnosed in an individual or is known to run in the family, there are often questions about implications for passing the condition on to future offspring. Questions can arise about whether any options exist to predict the likelihood that a future child would be affected by the condition, or even whether options exist to decrease or avoid the risk of future child having the condition. Learn about these options.

Vulvar Skin Care for Ectodermal Dysplasias

Women affected by ectodermal dysplasias can experience symptoms that are specific to being female and can be sensitive to talk about. We have a new library resource that these women will find useful for vulvar and vaginal care.

Ectodermal Dysplasia Treatment Videos Now Available

The one thing all our families want is information about ectodermal dysplasia treatment. You want to know what to expect for you or your child. You are seeking treatment options. You are looking for answers. That’s where the National Foundation for Ectodermal Dysplasias comes in. We now have six free videos of educational workshops from our 2017 Family Conference available to watch. You can hear from our experts, see their presentations and learn.