The one thing all our families want is information about ectodermal dysplasia treatment. You want to know what to expect for you or your child. You are seeking treatment options. You are looking for answers. That’s where the National Foundation for Ectodermal Dysplasias comes in. We now have six free videos of educational workshops from our 2017 Family Conference available to watch. You can hear from our experts, see their presentations and learn.
A Case Study: Dental Implants in a 23-Year-Old With Ectodermal Dysplasia
Dr. Jonathan Korostoff presents a case study of a 23-year-old male with ectodermal dysplasia who was seeking to replace his missing teeth with dental implants. He addresses the number of teeth missing, the treatment plan and the outcomes of the case.
Are Dental Implants Appropriate for Kids?
Understand the importance of age appropriate, medically necessary ectodermal dysplasia treatment.
Dentures for Kids
Who ever heard of preschoolers wearing dentures? THEY ARE TOO YOUNG FOR DENTURES! You may have heard this, even from your dentist. You may have even thought this. But guess what? It’s simply not true! Dentures for kids are a necessity if they are missing teeth due to ectodermal dysplasias. Many kiddos affected by ectodermal…
Missing Teeth, Missing Benefits
It’s common for someone to be missing a tooth or even two teeth. Some studies report about 20% of all adults are congenitally missing at least one tooth. More than 5% of us lack one or more second premolars or upper second (lateral) incisors. Though, numerous missing teeth, is less common. Leads to Diagnosis When…
Is There a Genetic Test For Your Type of Ectodermal Dysplasia?
The National Foundation for Ectodermal Dysplasias, just 25 years ago, began supporting research. The research was to identify the genes which cause the 180+ ectodermal dysplasias. Those efforts have paid off. We know many of the causative genes for many of these conditions, but not all. We still have lots of work to do! One of…
Dry Eyes in Ectodermal Dysplasias
By Richard A. Lewis, M.D., M.S. Many different disorders of the eye affect the stability of the tear film; an unstable tear film is a hallmark of “dry eyes”. Proper classification of the cause of a tear deficiency is critical for several reasons: Appropriate therapy depends on proper diagnosis; Certain conditions of dry eyes are…
Understanding Genetics
By Pilar L. Magoulas. M.S., C.G.C. All ectodermal dysplasias are heritable or genetic disorders, which means that they can be inherited or passed on to children. However, it is possible for a child to be the first person in his or her family to be affected by an ectodermal dysplasia. Chromosomes and Genes The body…