Record Setting Day for ELSA

June 24, 2020 was an extraordinary day for the Ensuring Lasting Smiles Act (ELSA). It was our largest turnout ever! Hear from Congress and find out what’s next for this key legislation.

How to Tell Your Advocacy Story

Telling your story is the most powerful way you can advocate for the Ensuring Lasting Smiles Act (ELSA). We know firsthand that many legislators who have co-sponsored ELSA did so because they were moved by a family’s story. Follow our tips to write and perfect your story.

How Virtual Advocacy Day Works

Find out how easy it is to participate in a Virtual Advocacy Day! We’ll you through the process of how you can raise your voice and help move the Ensuring Lasting Smiles Act through Congress.

ELSA Reaches Supermajority in the House

Our advocates’ hard work is paying off! It’s been one year since the Ensuring Lasting Smiles Act (ELSA) was re-introduced in Congress. We now have a supermajority in the House who are cosponsoring it!

This Law is For You

Have you spent a year or more fighting for a health insurance claim? What has the emotional and financial impact been on you and your family when you go without care? Continual insurance denials needlessly take a toll on you and your health. The Ensuring Lasting Smiles Act can change all that. Your involvement right now is critical.

Tellin’ the Truth About Advocacy

Have you ever said to yourself that you can’t advocate because you don’t know what you are doing or don’t have the time or can’t travel? NFED advocate Beth Orchard dispels those myths and empowers you to take action.

ELSA Gets Its First Hearing in the House

The Ensuring Lasting Smiles Act will get its first hearing in the House of Representatives. Kevin Koser will testify on behalf of individuals affected by congenital anomalies. Learn how you can help at this critical time.

Teen Advocate Wins Award

A teenager from Wisconsin captures national award for his courage to share his struggles with ectodermal dysplasias and create change.