U.S. House of Representatives Votes YES on the Ensuring Lasting Smiles Act

April 4th was an extraordinary day for families affected by ectodermal dysplasias and congenital anomalies!
You could almost hear the cries of victory and feel the joy of our advocates, families and staff who watched the live stream of the House of Representatives where they announced that ELSA had passed. Read about the exciting vote and what’s next for the bill in the U.S. Senate.

Brave ELSA Advocates Pour Out Their Hearts to Legislators

Three hundred brave advocates from 46 states shared their heartbreaking stories with U.S. legislators at this year’s Virtual Advocacy Day on Capitol Hill. They talked about the numerous surgeries and ongoing treatments they or their child has needed and how insurance companies won’t pay for it. With the House voting on April 4 for ELSA, find out what you can do to help.

Big News in the House for ELSA

Families affected by congenital anomalies are closer to getting health insurance benefits for the medical and health treatment they need. Our bill to mandate such payments took a big leap in the U.S. House of Representatives. Find out what the consensus calendar means and how you can help pass the Ensuring Lasting Smiles Act.

Two-Thirds of the House Support ELSA

The Ensuring Lasting Smiles Act has hit a major milestone in record time! Find out what’s next for the bill and a major obstacle that could prevent it from passing.

10 Great Tips for Advocating for ELSA

NFED mom and advocate, Samantha Mueller, has passionately advocated for the Ensuring Lasting Smiles Act since its beginning. She encourages families to take action using her easy tips!

ELSA Picks Up Speed After Fantastic Virtual Hill Day

It’s extraordinary what our advocates and staff have accomplished in just two months since the Ensuring Lasting Smiles Act (ELSA) (S.754/H.R.1916) was re-introduced in the 117th Congress! Our brave advocates shared their struggles on our Virtual Advocacy Day on Capitol Hill. Find out what’s happened with ELSA since they shared their stories.