At 13, Aidan Abbott is already getting to be a pro when it comes to advocating for ectodermal dysplasias on Capitol Hill. The Wisconsin teen built his confidence by telling lawmakers about the rare condition that affects him and thousands of others: ectodermal dysplasias. He and his family will be joining the National Foundation for Ectodermal Dysplasias (NFED) on July 18 for Ectodermal Dysplasias Advocacy Day on Capitol Hill. Aidan lists his 10 ten reasons why every kid with ectodermal dysplasias should come advocate with him.
We’re going back! To Capitol Hill for our 2nd Ectodermal Dysplasias Advocacy Day. We invite the ectodermal dysplasias community to join us July 17-18 in Washington D.C. Our goal is to ask Congress to support a bill (to be announced soon) that will provide insurance benefits for dental care of ectodermal dysplasias.
The Abbott family’s journey to new teeth for their son, Aidan, has not been an easy one. They have had to fight their insurance company every step of the way for years. Find out why his mom thinks it worth it and why every family must fight, too!
Senator Tammy Baldwin has been a big supporter of ectodermal dysplasias this past year. She introduced S.Res.226 in July and welcomed us to Capitol Hill. Now, she’s getting ready to take the next step toward helping us get a law mandating health benefits the dental care for ectodermal dysplasias.
Next week, we will announce several opportunities in our Autumn is for Advocacy campaign for you to make your voice heard about the need for a bill for health benefits for dental care of ectodermal dysplasias. Families, we need you to take action, to advocate.
Our families made a significant impact on Ectodermal Dysplasias Advocacy Day! We need everyone in our community to meet with their legislators. We give step by step directions. Ask them to support future legislation which will provide insurance benefits for dental care for all ectodermal dysplasias.
Our first Ectodermal Dysplasias Advocacy Day was an extraordinary moment in the history NFED. 175 people stormed Capitol Hill to educate our Congress.
Learn what to expect, where to go, what to say and more if you are attending the 2017 Ectodermal Dysplasias Advocacy Day on Capitol Hill.