Our Gift for You: A Major Advocacy Announcement

Senator Tammy Baldwin has been a big supporter of ectodermal dysplasias this past year. She introduced S.Res.226 in July and welcomed us to Capitol Hill. Now, she’s getting ready to take the next step toward helping us get a law mandating health benefits the dental care for ectodermal dysplasias.

Announcing a Week of Action To Get You Dental Care Coverage

Next week, we will announce several opportunities in our Autumn is for Advocacy campaign for you to make your voice heard about the need for a bill for health benefits for dental care of ectodermal dysplasias.  Families, we need you to take action, to advocate.

Autumn is for Advocacy

Our families made a significant impact on Ectodermal Dysplasias Advocacy Day! We need everyone in our community to meet with their legislators. We give step by step directions. Ask them to support future legislation which will provide insurance benefits for dental care for all ectodermal dysplasias.  

5 Reasons Why We Need You on Capitol Hill

Ectodermal Dysplasias Advocacy Day approaches quickly and we need you, our National Foundation for Ectodermal Dysplasias (NFED) family, to be there. We try time and again to be advocates to all members of the NFED. But only you and your family are the ones who can make a difference in the lives of people affected…

Webinar: Advocating for Ectodermal Dysplasias

Presenters – Becky Abbott and Beth Pond, Chairs, NFED Advocacy Committee This webinar took place on Tuesday, May 16, 2017 and was recorded. Our advocacy goal is to get a federal law passed that would guarantee that insurance companies would be mandated to pay health insurance benefits for necessary medical care and treatment due to…

NFED Members Participate in Advocacy Days

Advocacy continues to be a major emphasis for us in 2017.  While we continue to plan for our Ectodermal Dysplasias Advocacy Day on Capitol Hill in July, we also recently participated in some other advocacy days. We are grateful to Becky Abbott, Amy Leverenz and Marc Steingesser for representing the National Foundation for Ectodermal Dysplasias…

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