Meet Meg. She’s a high school student from Mequon, Wisc. who decided to hold a fundraiser in honor of her sister, Meredith. Meredith has a rare disorder called hypohidrotic ectodermal dysplasia or HED, which results in multiple missing teeth, sparse hair and a reduced ability to sweat.
Meg enlisted her friend to help. Since Meg and Meredith both love to dance, Meg called her event “Dancing for Smiles.” Their event was filled with excitement and amazing entertainment from the dancers from Bella Via Dance Studio. This mighty duo raised $3,195 for the NFED from their event. Bella Via’s motto is, “We are a family” and they sure showed how family steps up and supports one of their own.
The family sends a special “Thank You” to Dr. Clark Stanford who performed extensive dental work on Meredith. His involvement sparked Meg’s decision to “dance” it forward to help those with financial need. Dr. Stanford is the chair of the NFED Scientific Advisory Council.
Thank you, Meg, for being a leader, honoring your sister and raising money for our important work.
“Life is not about waiting for the storm to pass, it’s about learning to dance in the rain.” ~ unknown author
Has Meg inspired you to do an activity or event to raise money for ectodermal dysplasias? Consider Cookies for a Cure. Or, contact Seth Ferris at firstname.lastname@example.org to brainstorm and discuss your NFED fundraiser.
Other blog posts to read:Share Your Story