When you have a rare disorder like ectodermal dysplasia, it’s not easy to find a doctor or dentist who has a lot of experience in treating the condition. Some may go their whole career and never see a patient with ectodermal dysplasia. The process can be frustrating and time-consuming for you. Consider working with a care provider who is willing to study and learn about ectodermal dysplasia because they are interested in you and how to best care for you.
Here are resources to get you started in finding a partner for your medical and dental care:
- Check out one of our Dental Treatment Centers led by dental teams with experience in treating the ectodermal dysplasias.
- Contact the closest University School of Dentistry or Medical Center for specialty care.
- Ask your trusted provider for referrals.
- Contact us at the NFED office for a listing of care providers for your state. We can also assist you in locating a physician or dentist. We don’t recommend or endorse medical specialists, but we can assist you in finding medical and dental professionals in the U.S. recommended by NFED families or by other clinicians.
- Contact a local hospital and ask if they have a doctor’s referral program.
- Review the care provider list provided by your insurance company.
- Check out Gene Reviews, the National Organization for Rare Disorders, and Medscape Reference. Experts are often called upon to contribute to online publications such as these. Many of these resources list the author’s name and institution and may provide an e-mail address or phone number.
- MedlinePlus is a website designed by the National Library of Medicine to help you research your health questions. It provides links to directories to help you find health professionals, services, and facilities.
- Research professional associations for specialists.
Other blogs you may be interested in:
- Organizing Medical and Dental Information
- Genetic Counseling
- Information you should take to your Doctor or Dentist
106 comments on “Tips for Finding a Doctor or Dentist”
Thanks indeed , do you have any list for doctors in Saudi Arabia.
Would it work with decade teeth of a 2 year old ? And do i have centres and specialists in uk ?
Hi, Fuad. Please email Kelley at our office at email@example.com with your request. She will be able to tell you if we have any to send to you. Thanks!
[…] Tips for Finding a Doctor or Dentist […]
I like your idea on asking a trusted medical care provider for a referral for a dentist. I would imagine that a care provider would have a list of trusted professionals they could refer you to. I’m looking for a new dentist so I’ll have to check with a medical care provider for a good recommendation.
A friend of mine just moved to a new area, and he wanted to make sure that he chose the right dentist. I really like that you say to ask your provider for referrals. That way, you know they will be able to give you the care you need.
I had no idea that hospitals had a doctor or dentist referral program. I’ve heard that it is also a really good idea to find a general dentist by asking local friends or family for dentist referrals. I also like what you said about reviewing the care provider list provided by your insurance company, that way you know that the dentist you visit is covered b y your insurance!
It’s true that most dentists would not be the right candidate to treat someone with a rare disorder like that, which they have most likely never treated before. In a situation like that, it is best to consider moving to a location with a specialist center.
Your comment about asking your dental insurer for names and contact information of providers who are part of your dental plan sounds like a really good way to make sure that you are going to be getting the most from your benefits as you use your dentists services. I would think that it would still be a good idea to look at the different options you are given and compare them to decide who would work best for you. It seems to me that things like the friendliness of the staff would be ma little more important than the proximity of the office.
I have never heard of ectodermal dysplasia but I can imagine that it would be hard finding a dentist who knows what that is as well. I know lots of people have lots of diseases but they all still need good dental care. I am definitely going to keep these resources in mind If I ever find myself in this situation.
That’s a good tip to ask your insurance company for a dental recommendation. That way you’ll be able to find a dentist on your plan. I’ve had an ache in my tooth for a while now and I’ll have to find a dentist.
Great tip! Agreed, consulting your insurance company for a dental care provider recommendation in your area is the way to go! Then you know that you are really covered. Excellent article! Thanks for sharing!
Awesome tip! This is exactly how I found my dentist!
This is exactly how I found my dentist too Chris, shout out to https://jphilipp.com/ for being such a good dentist!
Agree that ectodermal dysplasia is a rare circumstance to have, not to mention treating teeth on top of it. Great article.
We are also a referal provider at http://bisharadental.com
I have a friend who got amalgams fillings and he regretted that he have those because it is bad for the health. I too is looking for a good dentist that will give me a safe fillings for my teeth.
You made a good point that it’s important to find a dentist that has experience treating your type of mouth. I like that you gave some tips on how to find a good dentist for you. I bet that people would also need to ask around, so they can find a good local dentist.
Thanks for pointing out the importance of finding a dentist who has experience treating any specific conditions that you have. While this process could be time consuming, as you mentioned, I am sure that it would pay off greatly in the long run. It could help to ask anyone you know who has a similar condition who they use, and why.
I like what this article recommends about researching professional associations to find a quality doctor. It makes sense that this could be helpful to make sure the doctor is qualified and able to do what you need them to. It’s something I’ll have to keep in mind for my family because I want my kids to stay healthy and get the care they need.
I had never considered to ask the local hospital for references they might have of who to see for oral health. I can see why they might have a list of doctors that they have dealt with in the past and who they trust and respect. My wife and I just moved into a new neighborhood a couple weeks ago and have been looking for a doctor and dentist to go to. I’ll have to call up the hospital and see if they have any insight on it.
I believe my son has ectodermal dysphasia, though he’s never been tested. He is now 21 years old and moved out of state, so I’m limited as to the help I can give him. Since he was 8 years old, he’s been to the dentist regularly (2 different ones), as well as an orthodontist (he was under her care for at least 6 years). Not once during that time did any of his dental providers ever mention ED to me as a possibility. All I ever heard was, “we have to wait for his face to stop growing” before going any further with treatment (implants). I learned about it through my own research and recently spoke to his pediatrician about it, who said it’s a good possibility. Would like for him to be tested and get some treatment for his teeth. I think it would do him a world of good. Can anyone tell me if there are any providers in the Nashville, TN area?
The best way to find a good dentist in my opinion is to ask around. You can trust your friend’s and family’s opinions because they know what is important to you and what you like. The dentist can be a little bit scary so finding a good one will help you and your kids to have the best possible experience.
You have some great tips for finding a good doctor or dentist. I hadn’t even thought about looking at a list provided by my insurance company. We are moving this year, so we will need to find a new dentist and doctor in our new area!
Finding a good provider for any service including dentists is reviews. Google, Yelp, Facebook reviews from their existing patients.
I had no idea that you could find a dentist through a university school. I’ve been trying to find a reliable dentist that could teach our kids some healthy habits. I wonder if we should consider asking for some referrals from some friends and neighbors.
My husband and I just moved our family to a new town, and we have lots to figure out. One of those things is a dentist. I really like what you suggested about talking to your provider, and seeing who they suggest. Like you said, they can be trusted, so I’m sure that they would be able to help me find a quality dentist.
I appreciate you talking about how you can consult your insurance company when looking for a good dentist. It makes sense that understanding this can help you save a ton of time and make a list of a couple dentist in your area. Personally, I would want to find a dentist that can help me understand my teeth better and how I can make them stronger.
Thank you for all this great information about choosing a dentist. One thing that really stood out to me is that you say to talk to your insurance and find out what they will suggest to you. It would be nice to know that you will be able to get everything covered in the end.
I really appreciated the suggestion for using your insurance provider for referrals when looking for a dentist. I think this could be especially helpful to someone who has just moved to a new area or is switching dentists and wants to find someone that will work with their insurance. I feel like I would also be more likely to trust a dentist that has been referred to me by my provider.
Hi nfed, thanks for sharing this article. I followed your tips and I’m very happy I found the right dentist for me in Charlotte.
That’s great news, Joshua! We are glad to hear it.
It really helped when you mentioned consulting with your insurance company when looking for a good dentist. I can definitely see how doing this can not only help you find a dentist that knows what they are doing but also save you a ton of money. Personally, I would want to find a dentist that knows how to deal with anxiety since my kids do not like dental visits even though they are necessary.
My husband and I just moved to a new state, and we are in need of finding a doctor to help keep us healthy. It really helped when you said that when it comes to choosing one that we need to contact a local hospital so we can see if they have a referral program. It will be really great for us if we can get one that is recommended by hospital, so we know that it is someone who is good at their job.
My wife and I just moved to a new area, and we wanted to make sure that we found a doctor just in case something happened. I loved your point about asking people that you trust for referrals to different doctors. It would be nice to hear their experience, and if they liked their personality.
My wife and I just moved into a new house and are looking for a local dentist to start visiting. I like that you suggest checking with local hospitals to see if they have referrals for dentistries. I trust the recommendation of other medical professionals so we might have to try this. Thanks for the tip!
It really helped when you talked about how you can review the list provided by your insurance company when looking for a good dentist. I can see that doing this can help you find a reputable dental clinic to work with and make sure you save on the treatment. We are planning on moving to a different town and want to make sure we find a good dentist for our family before hand, so I’m glad I found your post.
Ever since I moved to this new town I have needed to find a local dentist that I can go to regularly. It helped that you mentioned how you can contact a care provider or the closest School of Dentistry for a referral. I had no idea these were resource options for finding dental care. Thanks for the great tips.
I am with Barbera, these tips were great, awesome resource options
We’ve been needing to find some good dentist options for my kids since we moved, and I think that being able to get some tips on what we could look for would be helpful! I’m glad that you talked about being able to ask for referrals for a dentist, which I think would be so smart for us to do. I’m going to have to talk to a few of our friends and see if they have a particular dentist they would recommend! Thanks!
I’ve never thought of contacting a University School of Dentistry before for special care. My mom moved to a new area and is looking for a dentist, but she hasn’t had any luck so far in finding a place. A school and referrals seem like great ideas for helping my mom find a dentist.
Interesting and useful article. No one talks about Ectodermal Dysplasia, so this is a good resource for folks that find this article. Your suggestion to contact the local University School of Dentistry is a great idea. Not only will that work for finding a specialist but it’d also work for finding a general dentist. Thanks for the unique article.
I loved when you mentioned how you can ask your insurance company for a list of a dentist under their network where you can get the care you need. It is important to remember that taking the time to do this can help you compare several providers and choose the one that has experience with the care you need. We are moving to a new house and want to make sure we find a good dentist that can help keep our oral health properly, os I’m glad I found your post.
It’s good to know that when it comes to finding a dentist that there are somethings that we need to take into consideration so that we will be able to find one that will match our style. I like how you mentioned that one thing we need to do is check out local reviews to narrow down our options. It will be nice to have an expert’s opinion on this matter before any mouth emergency arises.
Thanks for your comment about how the dentist you hire should have positive reviews of their work. I like how you said that it would be good if they belonged to some sort of professional association. My mom is considering finding professional and experienced dentists to give her teeth implants.
There was a conversation I had with a few of my friends about how to find a dentist. They were all trying to think of different ways for one of our friends who is new to the area. I think that your advice to contact the local hospital for referrals is a great start.
You have some great tips for finding a good dentist. I like how you mentioned asking your insurance provider for a list of care providers. I wasn’t even aware I could do that, so when we move, I’ll have to check that for a new dentist.
I appreciate you talking about how you can consult your insurance company when looking for a good dentist. I have a dental insurance, but soon I will be moving to another area, and I will need to search there as I need to get some fillings. I think that affording the dental work I need should not be a stress, so I will do my best to search without any hurry or stress.
My wife asked me to help her find a dentist for our son’s dental treatments, and I think that being able to get one would be good. I’m glad you talked about being able to look for a reviewed care provider from our insurance company. I’m going to have to start our search there and see what I can find to get our son’s dental treatments done! Thanks!
It’s interesting to learn that there are places such as the University School of Dentistry and some medical center for specialty care which can help with the oral and medical care of people with rare disorders as you’ve mentioned. That should be perfect for my nephew as he was born with a deformity and a low resistance to sickness. I’ll try reading up more on how medical centers can offer a good place for him when he grows up. Thanks!
A dentist is a person who cares about your oral disease and tries to protect your mouth being infected. Considering regular check up by a good dental practitioner ensure about your present oral issues. When you choose a profound dentist for your oral treatment it should be determined by your dental health plan. Ask family, friends, neighbors or coworkers what they like about their dentist, or ask your physician for a referral. http://www.dentalgroupofsimivalley.com/family-dental-care/.
We need to find a new dentist on our neighborhood. I like how you said to look for a university of dentistry and see what they say. We just moved, so finding a dentist for our family is important.
I’m going to be moving in a couple of weeks, so I really appreciated the tips you shared on how I can find a good dentist. I was especially interested by your tip on how I can contact the local hospital to see if they can give referrals on who I should start seeing. How many referrals do you suggest I get and research before deciding who to start seeing?
I love that you talked about asking your trusted provider for referrals. My oldest sister is looking to hire a Crohn’s doctor but really needs help finding someone she can rely on. I’ll be sure to talk to her about asking people she trusts for referrals.
Nice posting. Thanks for sharing a great info.
Thanks for your comment about how you should look for a dentist that is trustworthy. I also like how you said that you should be able to trust them. My husband and I are considering dentists to give his father dental implants.
That’s cool that your insurance company will actually probably have a care provider list that you can consult. I’ve recently moved to a new city, and my gums keep on bleeding whenever I brush them. It’s probably a bad sign, so I’ll need to review that list and find a dentist I can go to soon.
I really like what you said about finding a good dentist that has experience working with patients that are under special conditions. I have a friend that is suffering from a special condition in their teeth and finding a good dentist that can work with them is important. Hopefully, we can find them a good dentist that works well for them.
It’s helpful to know how to choose a new dentist. We’re looking for a new one in our new neighborhood because we just moved. I’ll be sure to ask the closest school of dentistry I can find! I’ve never thought to try that.
It’s a really interesting and amazing post for all. I am very impressed with your article it includes very valuable information it has increased my skills. Keep writing such kind of article.
I never took into account that you could contact the closest dentistry school and ask them for referrals. My friend will be moving soon, so she’s looking for a dentist in her new area. I’ll definitely share these tips with her, so she can choose a great dentist to help her.
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I really appreciated it when you said that one of the things to do is to Contact the closest University School of Dentistry or Medical Center for speciality care. If you have serious dental issues, you will want a dentist who is capable of handling advanced procedures like oral surgery and dental implants. I will surely take note of that because I have to find a good dentist to deal with my toothaches right away. Thank you for sharing.
I like that you suggested seeking recommendations from medical and dental universities. I think they would be a reliable source since they know well what a good dentist should be. We just needed to seek a dentist as soon as possible because my husband just lost a front tooth, and he wanted to have a temporary tooth on it since it affected his smile.
It sure was nice to know that I can actually ask the local hospital for a doctor’s referral or get in touch with a university to ask for a specialty care. Considering how I do not know the first thing about looking for a dentist, I am willing to give anything a try. The fact that the community is too small did not help at all. Hopefully, the hospitals or the universities will be able to help me out. Thank you!
My family just moved to a new area and we are going to need to find a new dentist. Thank you for suggesting that we should check out the list provided by our insurance company. I’ll have to look at the list and see if I can find the best dentist for my family.
I really appreciate your tip to talk to local hospitals to find a dentist office in your area. My wife and I recently moved into a new neighborhood, and we are having trouble finding a dentist office that we can take our kids to. I will be sure to visit our local doctor’s office and ask about any dentists that they recommend!
I really loved your tip to contact your provider for trusted referrals. I recently moved to a new area and I am looking for a dentist to go to. I will be sure to ask te professionals for referrals.
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It makes sense that you can contact a hospital for a dental referral program. Having this insight would make it a lot easier for people to find the right dentistry office for them. My sister just moved and would certainly need this advice as she looks for a dentist.
At first you should ensure your dentist has a clean office. While many people believe restrooms are a good indicator of overall cleanliness, the same goes for the dentist’s office also.
You should take some time and do your homework to find the right dentist for you. It is important to get the advice of a licensed and board-certified dental professional to maintain a good health of your teeth.
Richard Castro || lifestyledental.co.uk
Last week I moved to a new area and I’ve noticed that my teeth are starting to hurt. I’m needing to find the right dentist in my area to help me get my teeth fixed. Thank you for suggesting calling the local dental schools and asking for a referral. I’ll have to keep this in mind and hopefully, I can find the best dentist.
Very useful information.
What I usually do when I’m looking for a good doctor or dentist is I ask family and friends first because I believe in their referrals before my own searching!
I like that you suggested checking the university that has dentistry to find a good one. I think that makes sense a lot since it can assure us that they are going to do the job well. We just need to see a dentist to know if a toothache that I am experiencing is due to the wisdom tooth that might be growing.
Never thought about checking the Gene reviews site for a good dentist. Thanks for the tips I will keep this in mind since I’m currently searching for a good dentist in my area.
I forget that with specific conditions, you need to find dentists or doctors that are sensitive and know how to deal with it. It’s interesting that not all dentists are trained in how to handle these types of situations. I will have to remember this if I have a health condition come up.
Thanks for the great tips for finding a good dentist. I like how you said that there are good review sites and things. Do hospitals give referrals for dentists too, or just doctors? We’re looking for a dentist in our new area.
Thanks for sharing these tips, My mom and I are looking for a clinic or dentist who can offer package services for the entire family. I have just listed the clinics and dentists that are not only known but well-recommended by my friends. After checking for each, we’ll able to determine as to which clinic we’ll get to ask for an appointment.
My family and I just moved to a new area, and we’re on the lookout for a dentist that can treat the whole family. Your article had some great tips for choosing a dentist like this, and I liked how you said to consider a general dentist, as they have studied for an undergraduate degree in dentistry, and spent another 2-4 years to practice in a dental school to pass the licensure exam. We want someone like this helping with our teeth, and we’ll keep this in mind when choosing the best dentist for our needs.
I wanted to thank you for this advice for finding a doctor or a dentist. You mentioned you should try to see the care provider list that is provided by your insurance company. This seems like a good way to learn where you can go that will take your insurance so you visits will be less money.
I like how you mentioned when looking for a doctor, you should contact a local hospital and ask if they have a doctor’s referral program. My family and I just moved into a new area where we don’t know anyone and need to find a good medical clinic to go to. I will definitely keep your advice in mind when looking for a suitable clinic for my family that can meet all our needs.
Thank you for these tips on finding a dentist. My sister and I are moving to a new area and we need to find the right dentist. I’ll have to do some research and find the best dentist possible.
We are glad that you have found our tips useful.
I like the tip that you gave to choose a dentist based off of the referrals given to you from your family and friends. My wife and I have been talking about finding a dentist for our daughter, and it would be important for us to know that we can find one that who we can trust. If we decide to find a dentist, I will be sure to look for referrals.
I like that you pointed out that we must look at reviews will help us have an idea if they have a good reputation through things they have shared in this industry. I will follow your advice now that I would need their help with my son’s teeth. This is because he has been complaining of the toothache he is experiencing. There might be a cavity on it due to his neglect.
I like the tip that you gave to choose a dentist who is referred to you by your provider. My wife and I have been talking about finding a dentist who is in the new city that we recently moved to, and it would be important for us to know that we could find one who we could trust in. If we decide to find a dentist, I will be sure to look for referrals from our provider, so we could know that we can trust in who we choose to hire.
Thank you for this information. I will really appreciate you, if you will review my practice Dentist in Waldorf MD
I thought it was interesting when you said that you can find a doctor by asking a hospital if they have a doctor’s referral program. My wife and I just moved our family to a new city, and my son has been complaining about pain in his stomach. We should probably take him to the doctor to see what is causing his pain.
Thanks for the tip that I can contact a local hospital to find a family doctor for my son. I think I’ve reviewed the list that was given to me by the insurance company, and they’re too far away from me. Hopefully, I can still ask my trusted provider if he knows any doctors in my area so I can take my son there for his annual checkup.
I like the tip that you gave to choose a dentist who has good reviews. My wife and I have been talking about finding a dentist to help our kids out. If we find one, I will be sure to check their reviews beforehand.
I like the tip that you gave to check the experience of a dentist before you decide to hire them. My wife and I have been talking about finding a dentist to help us if we choose to find a new one. If we do, I will be sure to look for one who has a good amount of experience.
You are right. I personally having issues with my ear and throat have been showing my self to an ent doctor nyc and honestly I believe that showing yourself to a particular specialist for a problem is way better then just showing yourself to a regular doctor.
It was interesting when you said you can contact a local hospital and see if they have any dental referrals. I recently moved and have been having a bit of a toothache and I don’t know any dentists in the area I’m in. I would love to see what dentist options I have in Fort Mill SC.
I found it interesting how you said that you should ask your trusted provider for referrals when finding a dentist, I’ve been wanting to find a dentist for a while now and I wanted to know how I could. I’ll keep this in mind for when I find a dentist.
I like the tip that you gave to get referrals form the people you trust. My wife and I have been talking about finding a dentist in our new city, and it would be important for us to know that we could find one who we could trust in. If we decide to find a dentist, I will be sure to get referrals to help us choose one.
I like what you said about making sure that you find a care provider that’s covered by your insurance. My wife and I recently moved to a new area, so we need to find a new dentist to go to. We’ll be sure to look into our options for dental care providers who are listed on our insurance.
I like what you said about checking with your insurance provider for referrals to new dentists. My brother has been telling me about how he’s moving across the state soon, and he’ll need a new dentist. I’ll share this information with him so that he can look into his options for professionals who can help him with this in the future.
iSmile is a famous dental clinic in New York City with highly qualified dentists. I have visited iSmile once in my life for Orthodontics treatment. Overall, all the arrangements, including treatment methods and experience of dentists is quite good.
It’s so smart to ask a local hospital if they have a doctor’s referral program because that’ll help you find a doctor much faster. My daughter and I need to find a dentist soon because we’re moving. It’ll be better to have a dentist before we get to the new house in case of a dental emergency.
It is always the right thing that we should check the experience of a dentist before we decide to visit them. Making the right choice is crucial.
You make an interesting point that enquiring about professional boards is one of the best ways to locate reliable medical clinics. My family and I just moved to a new town. I will look for a reliable medical clinic by calling one of the boards.
I never thought to check with a local hospital to see if they have any referrals on who to go to for a local dentist. We recently moved to a new city, and need to find a dentist, preferably one who will treat the whole family. I will have to call the local hospital and see if they have any suggestions for us.
I hadn’t thought about getting a provider list from my insurance when it came to choosing a doctor. It makes sense you’d want to do this if you want to be covered. Personally, I would want to find a doctor that can speak my language so I understand what the prognosis is.
John, we agree with both of your statements! Unfortunately, so often our community experiences denied or delayed insurance coverage, so we try to set everyone up for success by both recommending they get that list of approved providers and providing resources patients can take with them to their appointments so they, and their provider, can “speak the same language” about ectodermal dysplasias. If you are interested, you can check out our health care provider resources here: https://nfed.org/treat/health-care-provider-resources/