My name is Aaron Aselage. My father, brother, and of course, myself, all have ectodermal dysplasia. To say we had it rough as children is an understatement. Each of us had similar issues, but we’re also unique.
For instance, my brother had a more intensive surgery than myself in terms of cleft palate and dental work, whereas I had more difficulties with hearing and other skin issues. My father was adopted, so discovering this syndrome was a challenge back in the late 60s-early 70s.
When my mother and father discovered I was affected way back in 1991, my father reached out to his biological mother. When doing so, he found more answers that became helpful in determining what to expect.
I can empathize and sympathize with anyone/everyone going through the surgeries and the troubles that come along with being affected by ectodermal dysplasia.
With that said, I know most parents would agree that it’s also hard watching an individual go through some of the procedures. With caring health professionals and a supportive family, anyone can make it through and have a wonderful life no matter the circumstances.
I’d honestly love to hear back from others out there. I’ve personally never heard from anyone or met anyone else that has this in common. Please, ask me questions and don’t be afraid to contact me by commenting below.
You may be interested in:
- 15 Reasons to Attend Family Conference
- Pen Pals Across the Pond!
- Why I volunteer for NFED! My Son and others like him!
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