A Doc’s Perspective on the NFED Family Reunion (aka Family Conference)

By Alanna F. Bree, M.D., NFED Scientific Advisory Council Attending the NFED Family Conferences are almost like a family reunion for me.  Even though I am not related to anyone who attends, the people I have met through the NFED have become like an extended family to me.  This includes babies, children & adults affected by…

Register Early For A Chance to Win Disney Tickets

If you are planning to come to our National Family Conference in Orlando, be sure to register by May 25th. Early birds will have their name entered into a drawing for three cool prizes! 1st prize – Four evening tickets to Walt Disney World on Saturday, July 21st 2nd prize – Two nights’ lodging at the Buena Vista…

Orlando is a Great Family Destination

Orlando is a great family destination so plan your vacation to coincide with the NFED Family Conference. Many of you may be concerned about the heat and the humidty in Florida but all conference activities at the Buena Vista Palace and Spa are held indoors in climate controlled rooms. The only outdoor activity is an…

Finding Money to Help Pay Your Family Conference Expenses

With a little searching and networking you can find money to help you attend a National Family Conference.  Many families have been successful in obtaining funding from the sources below.  It takes internet searches, phone calls and persistence.  Call and ask about conference funding for families with special needs.  If you hit a roadblock, ask…

Meet Caitlin Sarubbi, Our Family Conference Motivational Speaker

Hello! My name is Caitlin Sarubbi, and I was born with ablepharon macrostomia.  This syndrome left me legally blind, partially hearing impaired and have undergone over sixty-two reconstructive surgeries to date.  However, 22 years later, I am an undergraduate at Harvard University, studying social and cognitive neuroscience, and a Paralympic ski racer, who competed in…