Regional Family Conference in Jackson, MS

We have mailed the registration form of the Regional Family Conference to be held in Jackson, MS at the Jackson Marriott Hotel on Saturday, September 10th, 2011 to all constituents in Mississippi and surroundings states.  Most of you should have received this form/flyer with program by now! If not, click on the highlighted link which will take you…

Could not come to our National Family Conference? Tell Us Why!

Our 2011 National Family Conference is sadly enough over with. Almost 400 individuals were in O’Fallon, Illinois to learn about the ectodermal dysplasias and met others who are similarly affected.  We are thrilled that so many families were able to join us. If you were not able to attend this year’s Family Conference, we want…

Info on Tour of NFED Office, Saturday 24 July, 2011

If you are interested in touring the NFED office in Mascoutah, IL after the conference is over, please do so!  However, the NFED will not provide transportation.  Driving Directions to our office were given at registration! Please, ask any of the staff if you cannot find your driving directions.  We will be glad to direct…