Find out how easy it is to participate in a Virtual Advocacy Day! We’ll you through the process of how you can raise your voice and help move the Ensuring Lasting Smiles Act through Congress.
April is Volunteer Appreciation Month! All of us at the National Foundation for Ectodermal Dysplasias (NFED) honor our 500+ volunteers who are the heart of our foundation. We value our volunteers all year long but April is a special month of showing our gratitude to you.
Helping others can end up helping ourselves and our health. Find out ways you can help pay it forward!
Mary Fete and Dr. Tim Fete share tips for helping teens with ectodermal dysplasias cope with life during the COVID-19 pandemic.
Our hearts broke when Dr. Frank Farrington recently passed after a long illness. We recall with much love and gratitude his amazing legacy after 40 years of service to the NFED and our families.
We are excited to introduce you to the newest member of our team, Tim Mickleson. He will serve as the Director of Development. “Tim brings 30+ years of experience in the corporate and nonprofit world,” said Mary Fete, executive director of the National Foundation for Ectodermal Dysplasias. “We look forward to him leading our fundraising…
The Stollers spent the first few years of their daughter, Kambree’s life, trying to figure out what was causing all of her different, possibly unrelated, symptoms. When Kambree was finally diagnosed with ectodermal dysplasia, professionals and genetic testing couldn’t pinpoint which type she might have. Until an NFED Family Conference changed their life. They found something they didn’t realize they were seeking.
There are many emotions that we are all experiencing throughout these days of uncertainty. It’s highly likely that each of us will travel through the stages of grief. Some days, the stress can feel so heavy. It’s important to recognize and accept that this is OKAY! While our situations and personal experiences may be different, we’re all learning how to accept and cope with the changes in our lives as a result of COVID-19