When Your Child Is Diagnosed With Failure To Thrive

It’s not easy when your child is not growing as expected. You want them to be healthy. A mom shares her emotional journey with her toddler who has failure to thrive (FTT) and hypohidrotic ectodermal dysplasia. Explore a new resource the NFED offers for FTT.

This Will Change You in the Best Way

The Fenoglio / Fodor family is showing their son Jackson how proud they are of him by volunteering. They believe in supporting your family. And for them, the NFED is family.

Pregnant Mom Travels Around the World For Her Unborn Son

A mom’s dream to give her unborn son working sweat glands sent her on a journey around the world during a pandemic. Watch this video to hear her story and the treatment for x-linked hypohidrotic ectodermal dysplasia they received.

Rise Up and Celebrate Caregivers

Today, we rise up and celebrate all of the caregivers around the world as part of Ectodermal Dysplasias Awareness Month! We pay tribute to everyone who has made someone’s ectodermal dysplasia journey a little easier.

ELSA’s New Bill Leads for 117th Congress

The Ensuring Lasting Smiles Act has new leadership in the U.S. House of Representatives! Find out who they are and how you can take immediate action that would make a lasting impact.