While there is little published about respiratory problems in ectodermal dysplasias, there is evidence to suggest an increased risk. Learn about the risks, potential causes and recommendations for prevention and treatment.
Has your dentist had a hard time finding a dental lab which could make dentures small enough for your child with ectodermal dysplasia? Are you a care provider searching for a dental lab to make small dentures for your pediatric patient? Learn how we can help!
Auggie and Dakota Olive have hypohidrotic ectodermal dysplasia, but they don’t sweat it. Hear how they overcame multiple obstacles and swam their way to the national championships.
The National Foundation for Ectodermal Dysplasias (NFED) is making some noise in the world of ectodermal dysplasias! We are shaping the future, with new research studies and breakthrough treatments that are already changing lives. You are such an important partner as we follow this path of breakthrough treatments and potential cures.
Do you have sensitive skin? Find out what products are safer for you to use. Plus, find out the best way to test them.
Today, we received fantastic news for x-linked hypohidrotic ectodermal dysplasia! EspeRare and Pierre Fabre announced that the ER-004 clinical trial is posted on ClinicalTrials.gov. Find out what that means and how it impacts our XLHED families.
Grab your friends and family for a fun-filled event to end the summer! We are hosting a FREE Virtual Family Trivia and Research Celebration Event.
We recognize Lea Richardson’s 10 years of service to our NFED family. Learn about her dedication and commitment as what her role is at the Foundation.