Palmoplantar Keratosis in Clouston Syndrome

For people affected by Clouston syndrome, the skin on their palms of their hands and soles of their feet can be thick. We have published a new medical article which explains the condition and the best ways to treat it.

The Amazing Power of Hope

Olivia Daniels has faced many challenges in her 22 years. She learned to channel her feelings and experiences into acts of service and kindness. She’s an amazing creative force for good! Find out how this pageant champion is using her platform to raise awareness of ectodermal dysplasias and serve others.

Volunteer Spotlight – Tom Richardson

If you are related to an NFED staffer, there’s a good chance you have volunteered for the Foundation. Read about one husband who’s gone the extra mile to help serve our mission.

During this season of giving, let’s think like a child!

In her book Raising Charitable Children, Carol Weisman, internationally recognized philanthropy expert (and full disclosure – a friend of mine), discusses how to instill a sense of giving in children – and then watch them develop into generous, responsible, thoughtful, kind, loving and happy adults. Carol beautifully sums up her approach in one simple line:…