Two-Year-Old Struggles to Eat With Just one Tooth

Jackson is 2 years old, and he’s hungry all the time. He wants to eat. But chewing is just too difficult for him, and he struggles to eat every day. Read how his parents are coping with meal time and helping their toddler who’s affected by x-linked hypohidrotic ectodermal dysplasia. Plus, download our new medical article, Feeding Solid Food to Children Without Teeth.

How Committed Volunteers Make the Mission

We are celebrating National Volunteer Month! It’s that special time when we salute all of you who step up and help our NFED families. Read how others are helping and how you can join our volunteer team!

Why the EDELIFE Clinical Trial is Just for XLHED Boys

The EDELIFE Clinical Trial is investigating a potential treatment for boys affected by x-linked hypohidrotic ectodermal dysplasia (XLHED). Some of you have asked why the clinical trial is focused only on boys and not girls with XLHED. Find out why.

An Easy Way to Double Your Impact at the NFED

Would you like to help search for free money for the NFED? It’s as easy as seeing if your company has a matching gifts program. Learn how these programs work and use our easy tool to see if your company will match your gifts.

Coming to Family Conference? Explore Colorado!

One of the best things you can do this summer is turn your Family Conference trip into a family vacation! Colorado is a beautiful place to explore and has something for everyone. Tack on a few days before or after the Conference for the perfect summer getaway. Our Conference will take place in Broomfield, Colorado,…