Hoarse voice? Difficulty swallowing? Dry mouth may be cause your issue. Learn about how ectodermal dysplasia can affect your salivary glands and what you can do to manage it.
It’s Time to Rise Up for Rare!
You are invited to join us to celebrate our community! It’s Ectodermal Dysplasias Awareness Month and we have lots of fun ways for you to get involved and spread the word.
Celebrate Kelley’s 20th NFED Anniversary!
Helping families with ectodermal dysplasias is her passion! Learn more about this staffer, the lives she’s touched and the many roles she’s played at the Foundation.
How You Can Volunteer in a Pandemic
Despite the crazy year of quarantine that 2020 was, numerous NFED volunteers still found ways to raise money and awareness for the NFED mission. Find out how you can get creative and get involved!
2020: A Year to Remember, Celebrate & Hope
2020 was a year full of challenges, but the NFED excelled in many ways. We brought hope into reality.
COVID-19 Vaccination and Ectodermal Dysplasias
Should you get the COVID-19 vaccination if you have ectodermal dysplasia? We’ll share with you our thoughts as well as those from the National Organization for Rare Disorders.
What’s Emotion Got To Do With It?
Kaitlyn Squibb knew all the ways that x-linked hypohidrotic ectodermal dysplasia affected her body. But, she’s finding strength as she learns how it impacts her emotions, too.
2021 Conference From Your Couch
Join us for conference from your couch! We are excited to share with you the 2021 National Foundation for Ectodermal Dysplasias (NFED) Webinar Series. You won’t want to miss this stellar line-up of speakers and our most asked about topics. Not only will each hour-long webinar provide lots of valuable information but you will be…