Charlotte Smith knows what it’s like to be a young woman with thin hair. Learn her best hair tips and how having hair has changed her.
Research Shows Effects of COVID-19 with Hypohidrotic Ectodermal Dysplasia
A team of researchers have published findings from the first longitudinal study of COVID-19 and HED. Find out what the risks and what they recommend to prevent them.
Trio of Fall Events Raise Spirits and Funds
We salute families in three states for their incredible events benefitting the NFED.
Now’s the Time to Contact Congress (and Make It Count)
We know that insurance coverage is unfair, but ELSA advocates must contact Congress to tell them. Take a step for smiles and contact your legislators.
A Day in the Life: Living with Hypohidrotic Ectodermal Dysplasia
Meet, Quiel Barrameda, a 35-year-old man from the Philippines who was born with hypohidrotic ectodermal dysplasia (HED). Learn how he stays cool and overcame major challenges with the love and support of his family.
Two-Thirds of the House Support ELSA
The Ensuring Lasting Smiles Act has hit a major milestone in record time! Find out what’s next for the bill and a major obstacle that could prevent it from passing.
Navigating the Risk for Respiratory Problems in Ectodermal Dysplasias
While there is little published about respiratory problems in ectodermal dysplasias, there is evidence to suggest an increased risk. Learn about the risks, potential causes and recommendations for prevention and treatment.
NFED Collaborates with Lab to Make Dentures for Kids
Has your dentist had a hard time finding a dental lab which could make dentures small enough for your child with ectodermal dysplasia? Are you a care provider searching for a dental lab to make small dentures for your pediatric patient? Learn how we can help!