My name is Caleb Locke. I’m 9 years old, and my wish is to have a full set of teeth. I have 4 upper teeth all misshaped, 2 of which are centrally located but not fully erupted. My dental team consists of a maxillofacial surgeon, prosthodontist, and an orthodontist.  My x-linked hypohidrotic ectodermal dysplasia has left my lower jaw short and thin throughout. I have no ridge for even a denture to rest on. There is almost no bone in my posterior upper jaw and both the height and width are significantly deficient.

Goals

My short term goals require me to have a sinus augmentation to add bone taken from my hip and implanted between my jaw and sinuses. This will allow me to have upper implants. My long term goals would include another bone graft to reconstruct my bottom jaw allowing me to receive implants.

Timing

Due to my age, my team is concerned about psychological and social influences while my Mom and Dad are concerned of the high cost of medical care required due to my health insurance not recognizing my oral care as a congenital anomaly. Your concern to close the loophole in my insurance will make my wish come true.

 

Will you advocate for me?

 

 

2 comments on “My Wish”

  1. 1
    Peggy Sue Long on April 13, 2019

    I stand with you, Caleb!

  2. 2
    Sarah on April 15, 2019

    Thanks for sharing Caleb!

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