Hi!  I’m Aubrey.  

I’ve been part of the National Foundation for Ectodermal Dysplasias (NFED) family for as long as I can remember.  My older brother, Sean, has hypohidrotic ectodermal dysplasia, and when we attended our first Family Conference back in 1987, we were hooked!

Sean Vora holds a lunchbox while his sister, Aubrey, wearing overalls stands next to him.
Here I am with my big brother, Sean, who is affected by HED.

I’ve attended most conferences since then with Sean and our dad, Anil, and we’ve each found ways to participate over the years. 

Sean and I are in the middle with friends we met at the NFED Family Conference in the early 1990s.

I have been an NFED baby,  kid, teen, room monitor, field trip chaperone, guest artist and facilitator! This  places me in a unique position to offer support during this socially-distanced summer and I am thrilled to be on the team! 

The pool party is always a fave at the Family Conference. Sean and I are at bottom left.

Helping Families During the Pandemic

My brother is now a father, as are many of my peers, and I see how this pandemic has especially impacted families. 

It is my hope that this At Home edition of Kays’ Kids Camp and Teens Program can offer parents a break, kids a boost and community members a fun way to contribute. 

We may be apart, but we are not alone! 

I am usually pretty nomadic, with a community spread across the world and work that travels with me everywhere.  I’m currently staying in California with my dad, Anil, keeping myself busy as a freelance illustrator/personal development coach/imagination trainer/facilitator/program designer…and now: camp director! 

If you’d like to learn more about me, you can visit www.curiosapiens.com 


Learn More and Sign Up Sign Up To Volunteer

Aubrey Vora is a guest blogger and volunteer for the NFED. She’s the volunteer director for the At Home Edition of Kays’ Kids Camp and Teens Program. You can read more about Aubrey in her blog, I’ve Often Felt Odd.

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