After a normal pregnancy, Brandi and Corey knew right away that something was wrong when their son, Maximus was born.  He had a wound on the top of his head, fused fingers and a missing toe. The nurses were hesitant to wipe off the newborn in fear his skin may slough up.

In this interview, Brandi and Corey talk about Maximus’ diagnosis of Goltz syndrome, his time in the NICU, and his numerous physical challenges. They discuss the relief and comfort they found in connecting with other Goltz families and the National Foundation for Ectodermal Dysplasias.  Listen as they explain why they gave him a strong name and their dreams for Maximus.

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3 comments on “Maximus’ Story with Goltz Syndrome”

  1. 1
    Martin on July 3, 2021

    Touching story

  2. 2
    Martin on July 3, 2021

    Hey, i am a clinician and I will like to be part of the initiative.

    1. 3
      Kelley Atchison on July 6, 2021

      Thank you. Please contact our office at info@nfed.org. We look forward to hearing from you.

      Kelley Atchison
      Director, Family and Community Programs

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