Roy and Leslie welcomed their fourth child and first son Maverick in 2009. From the beginning, he had signs that made him different than their other three children. He was sensitive to the sunlight where they lived in Texas and only wanted to go outside at night. When Maverick finally developed a few teeth and they were pointy, they took him to the dentist who said that it was something genetic.
Leslie went to the web where she diagnosed her son as having hypohidrotic ectodermal dysplasias at 15 months old. Their doctor confirmed it.
This Texas family sat down to give voice to their experiences and the range of emotions they have felt since Maverick’s diagnosis as a toddler. Listen to their voices as they share their approach to managing his dental care and inability and the dreams they have for their son.