Roy and Leslie welcomed their fourth child and first son Maverick in 2009.  From the beginning, he had signs that made him different than their other three children.  He was sensitive to the sunlight where they lived in Texas and only wanted to go outside at night. When Maverick finally developed a few teeth and they were pointy, they took him to the dentist who said that it was something genetic.

Leslie went to the web where she diagnosed her son as having hypohidrotic ectodermal dysplasias at 15 months old. Their doctor confirmed it.

This Texas family sat down to give voice to their experiences and the range of emotions they have felt since Maverick’s diagnosis as a toddler. Listen to their voices as they share their approach to managing his dental care and inability and the dreams they have for their son.

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5 comments on “Maverick’s Story With HED”

  1. 1
    How This Teen Takes On Life With Ectodermal Dysplasia | National Foundation for Ectodermal Dysplasias on November 1, 2016

    […] Maverick’s Story With HED […]

  2. 2
    Jean on November 14, 2017

    Our family is so proud of Leslie and Roy for being so proactive. They have learned so much about how to care for Maverick. Thank God they researched and got a proper diagnosis. He is such an awesome boy and has some really awesome parents. Thank you NFED.

    1. 3
      moffitt on March 8, 2019

      He really is I love him he is my brother he doesn’t let it effect him he is loyal and sweet he is AMAZING Ik love my brother so mu!!!

  3. 4
    Patricia Revilla on November 15, 2017

    Awesome… Could you send me info on Maverick dentist in Houston

  4. 5
    K. Moss on April 18, 2022

    I’m so glad Maverick’s story was told. It has given me hope and strength for what I fear we will soon be going through with my first and only grandson.

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