Do you know all the ways ectodermal dysplasia can affect the body? Let us help you know the signs.
We know that there are many more people in the world who are living with ectodermal dysplasia but are going undiagnosed. Families tell us how stressful and frustrating it was before they learned the name for their condition. Help us spread the word for Ectodermal Dysplasias Awareness Month. Watch and share this video.
Besides sharing this video, there are lots of other ways you can participate in Ectodermal Dysplasias Awareness Month this year. We have ready-made posts you can share on social media or flyers you can hang in your community. See what you can do to help us advocate for super smiles!
Raise Awareness
Did not know other people had this but me lol
Hi, Levi! You are definitely not alone! Welcome to our NFED family. For more information, we’d love for you to fill out the Join Us form at https://nfed.org/join-us/ and we’ll send it to you! You will find a lot of info on this website and we have wonderful Facebook private groups where you can connect with others who share your syndrome. Our staff is here to help! Just give us a call any time at 618-566-2020. ~ Take care, Jodi, NFED, Director, Marketing and Communications