By Mary Fete, M.S.N., R.N., C.C.M. and Elaine C. Siegfried, M.D.
We are all so grateful that we have a COVID-19 vaccine. Lots of you have questions about the vaccination process and whether or not individuals who are affected by ectodermal dysplasias should or should not get the vaccine.
You should discuss the vaccination with your primary care doctor and make an educated decision.
But, here are some important points for you to know.
All the vaccines were initially studied in adults. COVID vaccinations will not be available for children until the studies have been completed to support safety and effectiveness in this age group. These studies are just now beginning.
The completed Pfizer vaccine studies included adolescents down to age 12, so this one is available for adults and adolescents. Moderna and Johnson & Johnson vaccines are only approved for adults over age 18.
Each state varies with regards to eligibility for access. But younger people, who are at lowest risk for severe COVID infection, will be last.
The only contraindication to getting immunized is prior anaphylaxis (a sudden-onset, allergic reaction that causes breathing difficulty) to a vaccine ingredient, (e.g. PEG or polysorbate, ingredients used in other vaccines). You would likely remember having this type of reaction. Your medical records should have this information if you had such a reaction.
COVID vaccination is recommended (with routine monitoring for 30 minutes after injection) even for people with a history of other types of non-vaccine related anaphylaxis. People with other types of allergies should also get the vaccine.
Several recent studies have shown no increase in COVID severity among people with allergies (featuring rhinitis, eczema and asthma).
This is really important information for our ectodermal dysplasias community.
COVID vaccination should be given no sooner than two months after symptoms have resolved in people who got COVID.
You can refer to authoritative information:
- Centers for Disease Control and Prevention – Interim Clinical Considerations for Use of COVID-19 Vaccines Currently Authorized in the United States
- American Academy of Dermatology – COVID-19 Vaccine Information
- Journal of American Medical Association – SARS-CoV-2 Vaccines
Stay Safe and Informed About The Coronavirus
Also, keep checking our dedicated page to COVID-19 for the latest information and additional resources.