By Kayte Speegle
Hi. My name is Kayte. I am one of six in my family affected by hypohidrotic ectodermal dysplasia. I would love to say that it is “nothing,” but it is definitely a lot of something.
My grandpa was the first of the family to be diagnosed with ectodermal dysplasia. Then, there was me. We live in Alabama. Everyone knows Alabama has the weirdest weather. One day it’s cold. One day there is a tornado. Then, the next day it is 110 degrees outside. This totally takes a toll on us.
Throughout my entire childhood, I was bullied, humiliated and sad. I was always asked if I had cancer or if I was a vampire. This happened pretty much until the day I graduated. It hurt, but it was what it was. I graduated, and that is why we go to school right? Not to make friends!
When I was only 16, I gave birth to the cutest little, thin, blonde headed girl, Harleigh. From the week she was born until this day, people ask questions:”When is she going to get hair?” “Why is she two with only two teeth?”
The answer is because that is how God made her, and she is perfect just how she is. I never quite understood the love my mother had for me or the pain she went through when I was bullied, until I had Harleigh.
Goodness it hurts.
People’s words are mean, but as long as I know my child and I are perfect, that is all that matters. So, you will have to go through.
It is important to always lean on the ones who love you for amazing and loving support. Remember that it is okay to cry, but wake up the next day and take on life just like nothing happened.
Other blogs you may be interested in:
- Maverick’s Story With HED
- What A 10-Year Old Girl With HED Wants Her Dentists to Know
- What Does HED Look Like?