By Alanna F. Bree, M.D.
Pediatric Dermatologist, A Children’s House for Pediatric Dermatology
They not only do an excellent job of supporting and advocating for families affected by ectodermal dysplasia, but they are also an invaluable resource for building awareness and educating medical and dental professionals in the USA and around the world.
It is also because of their tireless efforts and vision that the research and potential treatments for the ectodermal dysplasias have moved forward so significantly. I can’t imagine a better organization to work with professionally or personally.
Take time to think
Take time to pray
Take time to laugh
It is the source of power
It is the greatest power on Earth
It is the music to our soul
Take time to play
Take time to love and be loved
Take time to give
It is the secret of perpetual youth
It is God’s given privilege
It is too short a day to be selfish
Take time to read
Take time to be friendly
Take time to work
It is the fountain of wisdom
It is the road to happiness
It is the price of success
Take time to do charity
It is the key to heaven
Mother Teresa knew that giving of yourself is one of the greatest gifts you can give. Fortunately the NFED has many dedicated volunteers who also know this, and I am lucky to count myself as one of them.
My favorite part of the organization is the people who have come into my life through my involvement. This includes the staff of the NFED who are some of the most kind-hearted, genuinely caring people I know. It also includes the colleagues who I feel fortunate enough to work with through collaboration and sharing of knowledge.
Most of all, it includes the individuals and families affected by ectodermal dysplasias. I see the unique beauty, the resilience, and the strength in each person I have met. While ectodermal dysplasia may affect some of us more than others, it does not define any of us. But it is luckily what brings us together through the work and efforts of the NFED.
Thanks to you, NFED, for doing what you do so well!Share Your Story